Celebrating 35 Years

Stories

Sam – A Face of NF

Sam, 33 I was diagnosed with neurofibromatosis type 1 (NF1) while being treated for scoliosis when I was 4 years…

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Levi – A Face of NF

Levi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…

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Tori – A Face of NF

I inherited NF1 from my father. I was diagnosed shortly after my birth. The doctor noticed that I had flat,…

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Ali – A Face of NF

I was diagnosed with neurofibromatosis type 2 (NF2) at the age of 10. Six Months after I was diagnosed, I…

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Jenny – A Face of NF

I was diagnosed with neurofibromatosis type 1 (NF1) when I was 16 years old. As a child in school, I suffered from…

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Watch Libby on The Doctors!

NF Midwest member, Libby, did an amazing job in her third appearance on The Doctors television show and her reveal…

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Libby Returns to the Doctors

NF Midwest community member, Libby Huffer, will appear for the third time on The Doctors on Monday, January 15th. Check your local…

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Brittany’s Story

Did you know that in 2017 your donations provided research grants to the University of Chicago, the University of WI-Milwaukee,…

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