Celebrating 35 Years

Stories

Evita – A Face of NF

My name is Evita Ali and I have NF1. I was diagnosed with neurofibromatosis when I was 30 years of…

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Shad – A Face of NF

I joined the Army at 19 years old. I did all the training and arrived at my duty station. In…

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Silas – A Face of NF

My sixteen-year-old son began getting café au lait spots at two months old.  Our pediatrician at the time gave us…

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RJ – A Face of NF

We had moved from a quiet neighborhood to a go, go, go city which meant switching all our providers. When…

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Sarah- A Face of NF

My STRONG and POSITIVE Sarah was born with NF1. Sarah has had 12 surgeries, 14 chemo sessions, 58 MRI’s, and…

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Ben – A Face of NF

My name is Ben. I’m graduating high school next week and heading to college this fall. Neurofibromatosis type 1 was…

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Geri – A Face of NF

I was diagnosed with neurofibromatosis type one at birth. It was caused by spontaneous mutation. I was born with glaucoma…

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Steve – A Face of NF

I am 67 years old and I have NF2. When I was 45, I had my first acoustic neuroma (now…

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Levi – A Face of NF

Levi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…

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Taylor – A Face of NF

I have been running competitively for almost 2 years and love it. It helps me relax, great stress reliever gave…

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