Celebrating 35 Years


Sam – A Face of NF

Sam, 33 I was diagnosed with neurofibromatosis type 1 (NF1) while being treated for scoliosis when I was 4 years…

Read More

Levi – A Face of NF

Levi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…

Read More

Tori – A Face of NF

I inherited NF1 from my father. I was diagnosed shortly after my birth. The doctor noticed that I had flat,…

Read More

Ali – A Face of NF

I was diagnosed with neurofibromatosis type 2 (NF2) at the age of 10. Six Months after I was diagnosed, I…

Read More

Jenny – A Face of NF

I was diagnosed with neurofibromatosis type 1 (NF1) when I was 16 years old. As a child in school, I suffered from…

Read More

Watch Libby on The Doctors!

NF Midwest member, Libby, did an amazing job in her third appearance on The Doctors television show and her reveal…

Read More

Libby Returns to the Doctors

NF Midwest community member, Libby Huffer, will appear for the third time on The Doctors on Monday, January 15th. Check your local…

Read More

Brittany’s Story

Did you know that in 2017 your donations provided research grants to the University of Chicago, the University of WI-Milwaukee,…

Read More

Get the Latest NF News & Updates

Sign up for our blog and always be up-to-date with Neurofibromatosis