Established in 1982. Improving CARE in six states in the Midwest.
Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.
We are dependent on funds raised by special events, foundations and individual donations. Support us in the fight against neurofibromatosis by visiting our Get Involved page.
Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.
NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis. Our continued focus and foundation is on Clinics, Awareness, Research, Education and Support in the states of Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri.
NF Midwest C.A.R.E.S.!
It's been the one place I truly can find help and hope for a better future.. This place is more like family than anything else.. they truly want to find a cure and unlike someplace (aka goodwill) the profits go where they need to be.. (like goodwill head people)... these people real care and out reach to help find the right sources a person need... we need more support and more help and need the recognition like any other non profit groups.. aka the cancer society . . Because even this diease has cancer among the people my mom and identical twin died from brain cancer.. NFL needs more donations to function and move forward so they can help more people.. I cannot say enough about the help and hope given here...
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.