Established in 1982. Improving CARE in six states in the Midwest.
Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.
We are dependent on funds raised by special events, foundations and individual donations. Support us in the fight against neurofibromatosis by visiting our Get Involved page.
Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.
NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis. Our continued focus and foundation is on Clinics, Awareness, Research, Education and Support in the states of Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri.
NF Midwest C.A.R.E.S.!
Just wanted to say Friday night and Saturday were very much worth the 301 miles we drove, and the best meeting we have attended anywhere considering our NF2 interests. Of course doctors Marco Giovannani and Bradley Welling were responsible for the in depth knowledge and understandings we acquired. And Matt Hay’s account of his Ironman achievement was an inspiration for all. Our thanks to all on your team who helped with the planning.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.