Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
View our upcoming events and join us in making NF Midwest great!
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Scholarships

Academic Scholarships of $1,000 are awarded annually to young adults with neurofibromatosis or schwannomatosis.

Academic Scholarships for Adults with NF

The Neurofibromatosis Midwest Scholarship Program was established in 2015 with funds donated by Francis and Irma Napolilli in 2014 and will continue through the generosity of future donors.

Eligibility Criteria: The NF Midwest Scholarship Program is open to individuals with NF who are entering or current undergraduate students (Associate’s, Bachelor’s, vocational school certification) at an accredited US-based college/university or trade/vocational school on a full-time basis. The program is only open to US citizens living in NF Midwest’s region which includes Illinois, Indiana, Iowa, Kentucky, Wisconsin and Missouri. Students may only receive this scholarship once.

These $1,000 scholarships are awarded once per student and may be used continuing undergraduate (Associate’s, Bachelor’s or Vocational) or graduate school on a full or part-time basis at an accredited, US-based institution.

Selection Process:

The NF Midwest scholarship committee considers many factors. Don’t be deterred by any one criteria. We encourage all students in our region to apply.

Applicants will be evaluated and scored on several criteria including, but not limited to:
- Involvement in NF Midwest and other NF-related activities
- Character
- Involvement in community service
- Evidence of determination and persistence through difficulties, including those related to life with neurofibromatosis.
Applications undergo an initial review to ensure that all the information requested has been submitted by the deadline.
If your application is incomplete or not on time, it will not be considered.
Scholarship recipients will be selected by the committee on the basis of criteria met.
The number of scholarships awarded are based on funds available.

The application process is usually open by mid January and are due no later than March 31st of the application year. While applying or after applying, each applicant must include:

A letter from a physician certifying the applicant’s NF diagnosis
A personal statement – see application for prompt
A letter of recommendation from a teacher, coach, mentor, etc.
An official high school transcript and acceptance letter or confirmation of enrollment from your chosen college, OR an official college transcript for those already enrolled.

Scholarship applicants will be informed by May 31st if they have received an award.

Questions? Please give us a call at (630) 945-3562 or send us an email at .

SCHOLARSHIP APPLICATION

Award Announcements:

Scholarship award recipients will be notified by email and letter (mail) around May 31st.
Applicants who are not selected to be scholarship recipients will be notified by e-mail or letter (mail) around May 31st.
Scholarship checks will be made out to the college or school of attendance and mailed to the school.

2020 Scholarship Recipients

2019 Scholarship Recipients

2018 Scholarship Recipients

neurofibromatosis, neurofibromas, scholarship

2017 Scholarship Recipients

2016 Scholarship Recipients

2015 Scholarship Recipients

Application Instructions:

Please read these instructions carefully. If you have any questions, please email or contact Diana at 630-945-3562.

Complete this application only if you are an entering or current undergraduate student.
Complete the entire application form and submit all of the requested additional information. If there are items/questions that are not relevant to you, write N/A for not applicable.
All applications must be typed.
Completed application must be received by March 31st by email to or to:

Neurofibromatosis Midwest
473 Dunham Rd, Suite 3
St. Charles, IL 60174

People Are Talking

..with the financial support of this scholarship, and the boost of confidence, I am passing the courses I have already completed with success. This is HUGE for me because I am not only completing my life goals, but I am proving to those who have always said I could not do it, that there [are] no limits to the things you do in life. It may take me longer than most people to complete, but that doesn't not mean that I will not complete it.

- Austin

Find NF Care

Get the best care! Find an experienced NF doctor/clinic in the NF Midwest region.

Be iNFormed

Knowledge is power! Learn and understand as much as possible about neurofibromatosis.

Community Support

Don’t fight alone! Meet others in the NF community to learn and share experiences.

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.