Research brings promise to the future! Awareness brings hope now!
You can become an activist and help raise awareness for NF. We have included here some tools to help. You may also contact the office about other ways to raise awareness.
Everyone has a story about how NF has impacted their lives. It may be that you have a child with NF or schwannomatosis; you may be affected; you may have seen the struggles of a friend; or maybe you just passed someone who has NF at a grocery store.
If you share that story on social media, through email or in a conversation with friends then you raise awareness.
You can take it a giant step further by creating a fundraising and awareness page on Firstgiving and sharing that with the world.How to Set-Up Firstgiving
Learn everything you can about NF1, NF2 and schwannomatosis and teach the world. Be knowledgeable and iNFormed.
You can start by checking out our Learn section and signing up for updates under Contact Us. Be sure to check back frequently for new articles and iNFormation.
Look for webinars, symposiums and other educational opportunities to help make you a true ambassador for the cause.Learn About NF
Wear the word on your body, your car, your wrist, your laptop…where ever you can. Hand out information about NF whenever you can,
Help the world to see it and recognize it. We have merchandise available at our store that includes clothing, wristband as well as business cards and brochure.
We are always looking for new and creative ways to spread the word. Let us know your ideas!Awareness Store
Thank YOU for all that you do for people with NF and their families! It brings tears to my eyes to see how much was raised for this cause. My brother had NF which turned cancerous and he passed away February 10, 2011 after a not-so-easy life with NF. My sister and father also struggled with this disease, then cancer and passed away in 1991 and 2008 respectively. This was our first NF Walk and we look forward to next year's. We were impressed with the organization of the walk, the DJ, the food, the prize baskets, the facilities and of course all of the care that went into it.My remaining sister and I, and our families, are determined to help out in any way to help cure this disease or assist other families who have NF in their lives. We look forward to raising more funds next year and dressing up our team! Our goal as a team is to raise a lot more money next year!
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.