Research brings promise to the future! Awareness brings hope now!
You can become an activist and help raise awareness for NF. We have included here some tools to help. You may also contact the office about other ways to raise awareness.
Everyone has a story about how NF has impacted their lives. It may be that you have a child with NF or schwannomatosis; you may be affected; you may have seen the struggles of a friend; or maybe you just passed someone who has NF at a grocery store.
If you share that story on social media, through email or in a conversation with friends then you raise awareness.
You can take it a giant step further by creating a fundraising and awareness page on Firstgiving and sharing that with the world.How to Set-Up Firstgiving
Learn everything you can about NF1, NF2 and schwannomatosis and teach the world. Be knowledgeable and iNFormed.
You can start by checking out our Learn section and signing up for updates under Contact Us. Be sure to check back frequently for new articles and iNFormation.
Look for webinars, symposiums and other educational opportunities to help make you a true ambassador for the cause.Learn About NF
Wear the word on your body, your car, your wrist, your laptop…where ever you can. Hand out information about NF whenever you can,
Help the world to see it and recognize it. We have merchandise available at our store that includes clothing, wristband as well as business cards and brochure.
We are always looking for new and creative ways to spread the word. Let us know your ideas!Awareness Store
It's been the one place I truly can find help and hope for a better future.. This place is more like family than anything else.. they truly want to find a cure and unlike someplace (aka goodwill) the profits go where they need to be.. (like goodwill head people)... these people real care and out reach to help find the right sources a person need... we need more support and more help and need the recognition like any other non profit groups.. aka the cancer society . . Because even this diease has cancer among the people my mom and identical twin died from brain cancer.. NFL needs more donations to function and move forward so they can help more people.. I cannot say enough about the help and hope given here...
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