Research brings promise to the future! Awareness brings hope now!
You can become an activist and help raise awareness for NF. We have included here some tools to help. You may also contact the office about other ways to raise awareness.
Everyone has a story about how NF has impacted their lives. It may be that you have a child with NF or schwannomatosis; you may be affected; you may have seen the struggles of a friend; or maybe you just passed someone who has NF at a grocery store.
If you share that story on social media, through email or in a conversation with friends then you raise awareness.
You can take it a giant step further by creating a fundraising and awareness page on Firstgiving and sharing that with the world.How to Set-Up Firstgiving
Learn everything you can about NF1, NF2 and schwannomatosis and teach the world. Be knowledgeable and iNFormed.
You can start by checking out our Learn section and signing up for updates under Contact Us. Be sure to check back frequently for new articles and iNFormation.
Look for webinars, symposiums and other educational opportunities to help make you a true ambassador for the cause.Learn About NF
Wear the word on your body, your car, your wrist, your laptop…where ever you can. Hand out information about NF whenever you can,
Help the world to see it and recognize it. We have merchandise available at our store that includes clothing, wristband as well as business cards and brochure.
We are always looking for new and creative ways to spread the word. Let us know your ideas!Awareness Store
There are a lot of big corporate charities out there that talk about how much they help people, but when we were looking for answers we did not get the help from them. It was NF Midwest that helped us. So it is important to me to get the word out about NF and NF MIdwest so that no other family has to feel as alone as we were when we were searching for answers. WHY SHOULD YOU DONATE TO NF MIDWEST INSTEAD OF THE OTHER GUYS???? To me the answer is simple. They care! Sometimes in life companies or charities get so big that they forget about why they are doing anything to begin with, they forget about the people they are suppose to help. Nf Midwest is NOT this way. They are there for those affected by NF and for their families. Sometimes in life bigger is not better. Our family likes to say that "NF Midwest is Small enough to care...Big enough to make a difference" And I am telling you that my family and others I know in my area that means a lot more then we could say. So please consider helping us in our NF cause and donate to this walk and NF Midwest!
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.