Education is the most powerful weapon we can use to change the lives of people with NF.
Continued education is especially important for families and individuals with NF because NF is a complex, highly variable disorder with complications that change throughout life.
NF Midwest aims to enable every individual and family challenged by NF to be well armed with knowledge and information so they can be a strong partner in their care and an advocate for their condition.
Thank you very much [for the packet]! My 6 year old son was diagnosed with NF last fall. My 8 month old will have his first appointment at the NF clinic in July. We are very excited about the walk. We just finished a T-shirt fundraiser. I had never even heard of NF before he was diagnosed, so NF Midwest has been a wonderful resource for us. Thank you for all that you guys do!
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