Education is the most powerful weapon we can use to change the lives of people with NF.
Continued education is especially important for families and individuals with NF because NF is a complex, highly variable disorder with complications that change throughout life.
NF Midwest aims to enable every individual and family challenged by NF to be well armed with knowledge and information so they can be a strong partner in their care and an advocate for their condition.
We thought the symposium was really great. It was really informative and was great to meet other families. Thank you for specifically introducing us to the couple from Tinley Park. We also had a chance to talk with some of the doctors during the lunch period and that was really helpful as well. …. … we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it's all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. …I also really liked the check presentations! How great to see the money/research going straight into the hands of the doctors.
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