Education is the most powerful weapon we can use to change the lives of people with NF.
Continued education is especially important for families and individuals with NF because NF is a complex, highly variable disorder with complications that change throughout life.
NF Midwest aims to enable every individual and family challenged by NF to be well armed with knowledge and information so they can be a strong partner in their care and an advocate for their condition.
NF Midwest has truly been a beacon through our journey with NF. They sponsor wonderful symposiums with the top NF researchers that share their latest findings. In fact, we found Silas's neurologist through one of their symposiums. They have even hosted educational conferences to help general practitioners better understand NF.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.