Education is the most powerful weapon we can use to change the lives of people with NF.
Continued education is especially important for families and individuals with NF because NF is a complex, highly variable disorder with complications that change throughout life.
NF Midwest aims to enable every individual and family challenged by NF to be well armed with knowledge and information so they can be a strong partner in their care and an advocate for their condition.
Thank you for all your efforts to end the struggles for people with NF. Thanks to you and this administration, you have made it possible for people with this disease to hold up their heads. I am encouraged yearly by the advances made to put an end to this disease that causes so much heartache. Thanks to you and this organization, people with NF, can say without shame or hesitation, what they have and what is being done.
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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