Education is the most powerful weapon we can use to change the lives of people with NF.
Continued education is especially important for families and individuals with NF because NF is a complex, highly variable disorder with complications that change throughout life.
NF Midwest aims to enable every individual and family challenged by NF to be well armed with knowledge and information so they can be a strong partner in their care and an advocate for their condition.
Thank you so much for the article. I really appreciate both the call reaching out and the article about Legius. I have been so impressed with the friendliness and helpfulness of everyone I've spoken with at NF Midwest. As you know, the unknown before and after a diagnosis can be scary. Thanks for wanting to help our family through it.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.