Education is the most powerful weapon we can use to change the lives of people with NF.
Continued education is especially important for families and individuals with NF because NF is a complex, highly variable disorder with complications that change throughout life.
NF Midwest aims to enable every individual and family challenged by NF to be well armed with knowledge and information so they can be a strong partner in their care and an advocate for their condition.
NF Midwest continues to develop short articles specific to various complications of NF1, NF2 and schwannomatosis. These articles are meant to be fairly easy to read by the non-scientific audience.
We are constantly looking to add articles. Please, let us know if you have a suggestions or if you are an expert that would like to help write one.
We continually work to make our website an easy source of information for everyone who wants to learn about NF and for people with NF to find other resources that may help.
In our Learn section, we don’t post deep research articles, but try to include material and links to help live and succeed with NF. We also have provide links to other resources on subjects such as school issues, insurance, social security and more.
Since 1990 NF Midwest has held a large education symposium for families and individuals with NF1, NF2 and schwannomatosis. This event brings in experts from around the world and provides a relaxed, social atmosphere for people to learn from them and each other.
We also sponsor inoformal Lunch with the Doctors (formally known as Ask the Doctor) in one or two locations a year.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.