Share experiences and learn from others while helping to build a strong NF community!
Meet others in the NF community to learn and share experiences; to build friendships for support; to stay on top of what’s happening clinically and in research; and to keep up-to-date on events in your area.
NF Midwest has proven to be a great resource and support for us as we make our way through this maze. They provided valuable information that we were able to share with our own families and friends. They were instrumental in helping to educate the teachers at [the] Elementary School where [my granddaughter] would be attending. When we held our bowling event last Saturday the local chapter was in attendance to share information and lend their support.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.