Share experiences and learn from others while helping to build a strong NF community!
Meet others in the NF community to learn and share experiences; to build friendships for support; to stay on top of what’s happening clinically and in research; and to keep up-to-date on events in your area.
I received the packet yesterday. Thanks so much for sending it! I really enjoyed the information you guys sent in regard to learning problems, etc. As someone who works in that field, I would really like to complement you guys on the information provided. When it comes to seeking help at school and all, you guys were spot on! Thanks again.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.