Share experiences and learn from others while helping to build a strong NF community!
Meet others in the NF community to learn and share experiences; to build friendships for support; to stay on top of what’s happening clinically and in research; and to keep up-to-date on events in your area.
I would like to thank y'all for this information on NF1. My son just turned 4 in April and was just recently diagnosed with neurofibromatosis type one which I have never heard of until my step mother said something to me about the spots all over his body and the two eye surgery's he has had in the past. This information has taught me a lot on this. Now we are seeing an NF1 doctor in Louisville and I just wanted to thank y'all for this [website] it helped a lot.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.