Share experiences and learn from others while helping to build a strong NF community!
Meet others in the NF community to learn and share experiences; to build friendships for support; to stay on top of what’s happening clinically and in research; and to keep up-to-date on events in your area.
If you are from our region you can join our Facebook group to stay in touch with others in the area and have more personalized conversations with us. To join, click JOIN GROUP in the upper right corner of the Facebook page.
Created by the NF Network this support community is an excellent place to ask questions and share experiences with others throughout the world.
The NF2 Crew is one of the largest NF2 support groups in existence, with hundreds of members spanning the globe. They connect through a variety of Internet-based communication mediums, but mainly Facebook or email via Yahoo.
Like us on Facebook and receive updates on NF and our events.
Sign-up for an event or contact us about creating one in your area.
Check out NF Midwest on Instagram and tag us.
Reach out to one of our great group leaders in areas throughout the Midwest.
Contact us in order to get updates and a free packet of iNFo for anyone affected with NF who is in the NF Midwest region.
I recently learned I have NF1 at the age of 29. Iam blown away with how fast these tumors are growing and haven't got a clue how to start, where to begin , or if I even want to know anymore [about] this . My heart is broken.... I took pride in my appearance and being a young female it's hard to explain to anyone that these are not warts or STDs. I just need help with excepting the reality of my condition, so thank you from the bottom of my heart for reminding me I'm not alone and giving information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions then I began with. So once again THANK YOU FOR CARING.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.