2024 iNFo Fair
Saturday, October 26th in Naperville, IL
Register NowNeurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.
Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.
Each year NF Midwest provides the opportunity for families to apply for scholarships for their son or daughter to attend…
Press Release FDA Grants Priority Review to SpringWorks Therapeutics’ New Drug Applicationfor Mirdametinib for the Treatment of Adults and Children…
NeurologyLive recently posted a video series Managing Neurofibromatosis Type 1 Related Plexiform Neurofibroma in Patients of Different Ages. The series…
There’s some exciting news for those with NF2-related schwannomatosis (NF2-SWN) that might bring hope to treatment options! A recent study…
Are you a passionate young adult looking to make a difference? The NF Young Adult Leadership Program is your chance…
Have you seen our new video series called Meet the Faces of NF Care? This series is designed to give…
Dust off your rising helmet and join us as we team up with the Children’s Tumor Foundation to raise funds…
We are deeply saddened by the passing of Dr. Vincent “Vic” Riccardi, a pioneering expert in neurofibromatosis (NF) research and…
The NF Midwest Scholarship Program is proud to add another year of empowering students with neurofibromatosis (NF) to achieve their…
We are absolutely thrilled to share some amazing news: thanks to your incredible generosity, you’ve raised an outstanding $144,024 for…
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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