Explore for extra resources on insurance, disabilities, Spanish material and more.
We are constantly looking for resources and material to help our NF community in any way. If you come across a resource that you have found helpful please be sure to share it with us.
A national program working to enroll children and adults in low cost or…
National Organization for Rare Disorders
Best place to start to find insurance and health care coverage.
Pacer Center Champions for Children with Disabilities
ASK Resource Center
Journal of Accountancy
NF Midwest By Ram Meyyappan
Instituto Nacional de Trastorno Neurológicos y Accidentes Cerebrovasculares
La información sobre la neurofibromatosis.
By Dr. Maria Acosta
La grabacion seminario - Los fundamentos de la Neurofibromatosis – Dra. Maria T.…
de NF California
de Hospitales y Clínicas de Minnesota para niños
U.S. National Library of Medicine
University of Utah
U.S. Department of Health and Human Services
In March 2013 NF Network hosted a webinar presented by Susan Fitzsimonds, the…
Thank you for all your efforts to end the struggles for people with NF. Thanks to you and this administration, you have made it possible for people with this disease to hold up their heads. I am encouraged yearly by the advances made to put an end to this disease that causes so much heartache. Thanks to you and this organization, people with NF, can say without shame or hesitation, what they have and what is being done.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.