Explore for extra resources on insurance, disabilities, Spanish material and more.
We are constantly looking for resources and material to help our NF community in any way. If you come across a resource that you have found helpful please be sure to share it with us.
Or mission: Create a community of support for individuals affected by Neurofibromatosis and…
Our Mission: “Is to find treatments and a cure for neurofibromatosis by promoting scientific research,…
Our Mission: Drive research, expand knowledge, and advance care for the NF community.
Our mission: Working to authentically educate, advocate, counsel, support and fund research initiatives…
Our mission: Enhancing the quality of life for those affected by Neurofibromatosis in…
The mission of NF Central Plains is to create a community of support…
Our Mission: To bring hope to those affected by neurofibromatosis and allied disorders. Serving:…
Our mission is to meet the needs of people impacted by neurofibromatosis by…
The Brandon Merritt Charitable Foundation B the Difference, the Brandon Merritt Charitable Foundation, is…
Hosted by NF Midwest, Texas NF, and NF Northeast
By Marina Kurakin from the Legal Council for Health Justice
A national program working to enroll children and adults in low cost or…
National Organization for Rare Disorders
Best place to start to find insurance and health care coverage.
Hosted by NF Midwest, Texas NF, and NF Northeast (Video)
By Ellyce Anapolsky, senior attorney at Legal Council for Health Justice.
Tags: Social Security
Pacer Center Champions for Children with Disabilities
ASK Resource Center
Journal of Accountancy
NF Midwest By Ram Meyyappan
Instituto Nacional de Trastorno Neurológicos y Accidentes Cerebrovasculares
La información sobre la neurofibromatosis.
By Dr. Maria Acosta
La grabacion seminario - Los fundamentos de la Neurofibromatosis – Dra. Maria T.…
de NF California
de Hospitales y Clínicas de Minnesota para niños
U.S. National Library of Medicine
University of Utah
U.S. Department of Health and Human Services
In March 2013 NF Network hosted a webinar presented by Susan Fitzsimonds, the…
211 is a service that links you with a referral specialist who can…
This website list local agencies where one can apply for SNAP (Supplemental Nutrition…
SHIP is a program that offers help with Medicare education, Medicare trouble shooting,…
This website allows users to search for local agencies that offer LIHEAP applications.…
A website that allows a tailored search for many resources such as help…
NF iNFo Fair Recording
By Gillian Payne, The Littlest Tumor Foundation
Tags: lobbying, CDMRP, NIH, advocacy
US Department of Defense Congressionally
NF Midwest is an amazing group full of support, information and most importantly, acceptance and understanding. They do so much to promote awareness about Neurofibromatosis, and provide support to families that don't know what to do, or where to go when they are given the diagnosis.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.