More Resources

Explore for extra resources on insurance, disabilities, Spanish material and more.

NF Midwest Resources

We are constantly looking for resources and material to help our NF community in any way. If you come across a resource that you have found helpful please be sure to share it with us.

Resources for Insurance and Financial Help for Health Care

Healthcare.gov
The best place to start to find insurance and health care coverage.

Health Resources and Services Administration Data Warehouse
US Department of Health & Human Services repository for HRSA data enabling users to gather relevant and meaningful information about health care programs in their area.

NORD Medical Assistance Programs
May provide financial assistance for  life-saving or life-sustaining care.

Covering Kids & Families
A national program working to enroll children and adults in low cost or free health care coverage programs.

United Health Care Children’s Foundation
medical grants to help children gain access to health-related services not covered, or not fully covered, by their family’s commercial health insurance plan.

The First Hand Foundation
Provides funding for individual children—both domestically and globally—who need assistance with clinical necessities (such as surgery, medication and therapy), medical equipment and travel related to care.

NeedyMeds.org
Find help with the cost of medicine

Disability Assistance

AbleData
provides reviews on products to aid the disabled. They also provide information on where to get the products.

Potential income tax benefits for families with special needs children 

Recursos en Español

La neurofibromatosis tipo 1
de Hospitales y Clínicas de Minnesota para niños

Amigos Con NF
de NF California

Los fundamentos de la Neurofibromatosis
Seminario de grabación por el Dr. Maria Acosta

Neurofibromatosis
La información sobre la neurofibromatosis del Instituto Nacional de Trastorno Neurológicos y Accidentes Cerebrovasculares

Genetics Info

Help Me Understand Genetics
U.S. National Library of Medicine

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