Explore for extra resources on insurance, disabilities, Spanish material and more.
We are constantly looking for resources and material to help our NF community in any way. If you come across a resource that you have found helpful please be sure to share it with us.
The best place to start to find insurance and health care coverage.
Health Resources and Services Administration Data Warehouse
US Department of Health & Human Services repository for HRSA data enabling users to gather relevant and meaningful information about health care programs in their area.
NORD Medical Assistance Programs
May provide financial assistance for life-saving or life-sustaining care.
Covering Kids & Families
A national program working to enroll children and adults in low cost or free health care coverage programs.
United Health Care Children’s Foundation
medical grants to help children gain access to health-related services not covered, or not fully covered, by their family’s commercial health insurance plan.
The First Hand Foundation
Provides funding for individual children—both domestically and globally—who need assistance with clinical necessities (such as surgery, medication and therapy), medical equipment and travel related to care.
Find help with the cost of medicine
provides reviews on products to aid the disabled. They also provide information on where to get the products.
NF Midwest has proven to be a great resource and support for us as we make our way through this maze. They provided valuable information that we were able to share with our own families and friends. They were instrumental in helping to educate the teachers at [the] Elementary School where [my granddaughter] would be attending. When we held our bowling event last Saturday the local chapter was in attendance to share information and lend their support.
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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