Explore for extra resources on insurance, disabilities, Spanish material and more.
We are constantly looking for resources and material to help our NF community in any way. If you come across a resource that you have found helpful please be sure to share it with us.
A national program working to enroll children and adults in low cost or…
National Organization for Rare Disorders
Best place to start to find insurance and health care coverage.
Pacer Center Champions for Children with Disabilities
ASK Resource Center
Journal of Accountancy
NF Midwest By Ram Meyyappan
Instituto Nacional de Trastorno Neurológicos y Accidentes Cerebrovasculares
La información sobre la neurofibromatosis.
By Dr. Maria Acosta
La grabacion seminario - Los fundamentos de la Neurofibromatosis – Dra. Maria T.…
de NF California
de Hospitales y Clínicas de Minnesota para niños
U.S. National Library of Medicine
University of Utah
U.S. Department of Health and Human Services
In March 2013 NF Network hosted a webinar presented by Susan Fitzsimonds, the…
I recently learned I have NF1 at the age of 29. Iam blown away with how fast these tumors are growing and haven't got a clue how to start, where to begin , or if I even want to know anymore [about] this . My heart is broken.... I took pride in my appearance and being a young female it's hard to explain to anyone that these are not warts or STDs. I just need help with excepting the reality of my condition, so thank you from the bottom of my heart for reminding me I'm not alone and giving information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions then I began with. So once again THANK YOU FOR CARING.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.