Explore for extra resources on insurance, disabilities, Spanish material and more.
We are constantly looking for resources and material to help our NF community in any way. If you come across a resource that you have found helpful please be sure to share it with us.
A national program working to enroll children and adults in low cost or…
Best place to start to find insurance and health care coverage.
National Organization for Rare Disorders
ASK Resource Center
NF Midwest By Ram Meyyappan
Pacer Center Champions for Children with Disabilities
Journal of Accountancy
de NF California
de Hospitales y Clínicas de Minnesota para niños
By Dr. Maria Acosta
La grabacion seminario - Los fundamentos de la Neurofibromatosis – Dra. Maria T.…
Instituto Nacional de Trastorno Neurológicos y Accidentes Cerebrovasculares
La información sobre la neurofibromatosis.
U.S. National Library of Medicine
University of Utah
In March 2013 NF Network hosted a webinar presented by Susan Fitzsimonds, the…
U.S. Department of Health and Human Services
I just had to commend you on an amazing event yesterday. I have to admit, this whole fundraising experience has been extremely emotional for me. I've been focusing on NF and thereby losing sleep worrying about [my daughter's] future way more than I'd like to. To be honest, I was a little worried about attending the walk and getting more upset. I actually had the best time. It was such a fun, positive event. I felt like everyone had so much fun and it was a great thank you to all of our supporters. You all do such incredible work. And the award for top-raising team...I was super excited to win the title and the plaque, I had no idea we'd get a bag full of awesome loot! Thanks so much for everything. A part of me wishes I had still never heard of NF, but since it's in my life to stay, I'm so glad that all of you are too. We are going on vacation next week and I'm taking the rest of the month off from NF, but later in the summer I have a group of amazing moms in my community ready to enlist and help me plan a local fundraiser.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.