Explore for extra resources on insurance, disabilities, Spanish material and more.
We are constantly looking for resources and material to help our NF community in any way. If you come across a resource that you have found helpful please be sure to share it with us.
Hosted by NF Midwest, Texas NF, and NF Northeast
By Marina Kurakin from the Legal Council for Health Justice
A national program working to enroll children and adults in low cost or…
National Organization for Rare Disorders
Best place to start to find insurance and health care coverage.
Hosted by NF Midwest, Texas NF, and NF Northeast (Video)
By Ellyce Anapolsky, senior attorney at Legal Council for Health Justice.
Tags: Social Security
Pacer Center Champions for Children with Disabilities
ASK Resource Center
Journal of Accountancy
NF Midwest By Ram Meyyappan
Instituto Nacional de Trastorno Neurológicos y Accidentes Cerebrovasculares
La información sobre la neurofibromatosis.
By Dr. Maria Acosta
La grabacion seminario - Los fundamentos de la Neurofibromatosis – Dra. Maria T.…
de NF California
de Hospitales y Clínicas de Minnesota para niños
U.S. National Library of Medicine
University of Utah
U.S. Department of Health and Human Services
In March 2013 NF Network hosted a webinar presented by Susan Fitzsimonds, the…
NF Midwest has proven to be a great resource and support for us as we make our way through this maze. They provided valuable information that we were able to share with our own families and friends. They were instrumental in helping to educate the teachers at [the] Elementary School where [my granddaughter] would be attending. When we held our bowling event last Saturday the local chapter was in attendance to share information and lend their support.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.