
We Need Your Personal Letters for Congress
February 6th and 7th, NF Midwest staff and volunteers will be meeting with our the offices of our Senators and…
Read MoreFebruary 6th and 7th, NF Midwest staff and volunteers will be meeting with our the offices of our Senators and…
Read MoreAn article by Sharon Reynolds from the National Cancer Institue highlights the importance of people with neurofibromatosis type 1(NF1) to…
Read MoreResearchers at Massachusetts General Hospital are investigating a new stress and symptom management program for adolescents (ages 12-17) with NF1,…
Read MoreResearchers are looking for at least 1,000 people over the age of 40 with NF1 to participate in an exciting…
Read MoreIf you struggle with pain from NF1, you are invited to participate in a clinical trial to evaluate a chronic…
Read MoreOnline Harvard study to help teens learn Stress and Symptom Management Skills NOTE: PLEASE CONTACT THE RESEARCHERS DIRECTLY TO PARTICIPATE-NF…
Read MoreThe DOD NF Research Program (NFRP) is looking for consumer reviewers. The Department of Defense, Neurofibromatosis Research Program Overview The…
Read MoreUPDATE – – As of Friday, February 12, U of W-Milwaukee will start a second group for this study in…
Read MoreThanks to the support of our donors, NF Midwest is proud to be one of four NF organizations collaborating to…
Read MoreWe did it! We’re pleased to announce that $20 million in federal funding has been secured for the Neurofibromatosis Research…
Read More
© 2023 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.