42 Years of Care and Ensuring No One Fights Alone!

Research Trials and Studies

Highlighted Research Trials and Studies

Go to CLINICALTRIALS.GOV for a more comprehenisive list of ongoing studies and trials.

Research Studies and Trials

NF1 Research Studies and Trials

Identify biomarkers for visual restoration strategies in Neurofibromatosis Type 1 optic pathway glioma patients.

Stanford Ophthalmology, Children's hospital of Philadelphia and Gilbert Family Foundation | 2024

This study is seeking to learn how different eye tests and devices can…

Neural Underpinnings of Attention in Children with NF1

University of Wisconsin-Milwaukee | 2023
By Dr. Bonnie Klein-Tasman

Neurofibromatosis Type 1 Tumor Early Detection (NF1-TED) study-Recruitment will start soon.

Dana-Farber/Boston Children's | 2024

The Neurofibromatosis Type 1 Tumor Early Detection (NF1-TED) study will determine whether a…

Research Study To Understand Barriers To NF1 Care

Mass General Brigham | 2023

We want to learn more about your experiences looking for NF1 medical information…

Topical Gel study for Adults with NF1 & cNFs

NFlection Therapeutics | 2023

Developing Novel Biomarkers of Plexiform Neurofibroma Tumor Burden in NF1

Ann & Robert H. Luries Childrens Hospital of Chicago | 2023
By Carlos Prada, MD

Recruiting NF1 individuals with known Plexiform Neurofibromas

Natural History of Cutaneous Neurofibromas in people with NF1

John Hopkins Medicine | 2023
By Carlos Romo, MD

Still recruiting for: Children and teens 19 years and younger.Adults 40 years and…

Resilient Youth Study (age 12-17 NF or SWN)

Massachusetts General Hospital/Harvard | 2022
By Julie Brewer

Children’s Attention Study Using EEG Ages 7 to 11 with ADHD (without NF1)

University of Wisconsin-Milwaukee | 2021
By Bonnie Klein-Tasman, PhD

NF2 Research Studies and Trials

SWN Research Studies and Trials

Get the Latest NF News & Updates

Sign up for our blog and always be up-to-date with Neurofibromatosis

Visit Us
Follow Me