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Research Trials and Studies

Highlighted Research Trials and Studies

Go to CLINICALTRIALS.GOV for a more comprehenisive list of ongoing studies and trials.

Research Studies and Trials

NF2 Research Studies and Trials

SWN Research Studies and Trials

NF1 Research Studies and Trials

Neural Underpinnings of Attention in Children with NF1

University of Wisconsin-Milwaukee | 2023
By Dr. Bonnie Klein-Tasman

NF1 Genetics Study

Stanford University, in collaboration with Johns Hopkins University and The University of California San Francisco (UCSF) | 2023
By Kavita Sarin, MD, PhD and Carlos Romo, MD

Research Study To Understand Barriers To NF1 Care

Mass General Brigham | 2023

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Stakeholder perspectives on treatments for neurocognitive and behavioral concerns in RASopathies 

University of Minnesota | 2023

Topical Gel study for Adults with NF1 & cNFs

NFlection Therapeutics | 2023

Developing Novel Biomarkers of Plexiform Neurofibroma Tumor Burden in NF1

Ann & Robert H. Luries Childrens Hospital of Chicago | 2023
By Carlos Prada, MD

Natural History of Cutaneous Neurofibromas in people with NF1

John Hopkins Medicine | 2023
By Carlos Romo, MD

Resilient Youth Study (age 12-17 NF or SWN)

Massachusetts General Hospital/Harvard | 2022
By Julie Brewer

CLOSED: 07/2023

CLOSED Online PEERS Study (Age 12-17 with NF1)

University of Wisconsin and Minnesota | 2022
By Bonnie Klein-Tasman, PhD

Children’s Attention Study Using EEG – Ages 7 to 11 With ADHD

University of Wisconsin-Milwaukee | 2021
By Bonnie Klein-Tasman, PhD

Children’s Attention Study Using EEG – Ages 7 to 11 WITHOUT NF1

University of Wisconsin-Milwaukee | 2021
By Bonnie Klein-Tasman, PhD

Children’s Attention Study Using EEG – Ages 7 to 11 with NF1

University of Wisconsin-Milwaukee | 2021
By Bonnie Klein-Tasman, PhD

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