Be iNFormed. Find material and educational opportunities.
Because it is so complex, it is vitally important for people with NF and their families to learn and understand as much as possible about neurofibromatosis.
Thanks again for directing the annual NF symposium. Your hard work & dedication to the cause is really appreciated. I stayed to the end and participated in the Lessons Learned/Focus Group. I am So glad I did. I learned so much & met amazing people who want to help my wife with her struggles w/ Schwannomatosis. All of this wouldn't be possible without dedicated people like yourself who give so much to the cause.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.