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Because it is so complex, it is vitally important for people with NF and their families to learn and understand as much as possible about neurofibromatosis.
Thank you very much [for the packet]! My 6 year old son was diagnosed with NF last fall. My 8 month old will have his first appointment at the NF clinic in July. We are very excited about the walk. We just finished a T-shirt fundraiser. I had never even heard of NF before he was diagnosed, so NF Midwest has been a wonderful resource for us. Thank you for all that you guys do!
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