Be iNFormed. Find material and educational opportunities.
Because it is so complex, it is vitally important for people with NF and their families to learn and understand as much as possible about neurofibromatosis.
Finding the right doctor to oversee the care of your neurofibromatosis is the most important thing you can do for you or your loved one.
Learn about the complexities of neurofibromatosis and the different types of neurofibromatosis.
Browse through resources related to NF Type 1, including articles, websites, webinars and more.
Browse through resources related to NF Type 2, including articles, websites, webinars and more.
Browse through resources related to Schwannomatosis, including articles, websites, webinars and more.
Check out articles produced by or for NF Midwest that address some of the complications or questions that may arise about NF.
Browse through additional resources related to neurofibromatosis or any of its many complications.
Every fall since 1990, NF Midwest has held an educational symposium to learn more about NF, from experts, but also to meet and learn from each other!
Contact us if you are looking for iNFormation not provided here, or if you have any questions.
I just had to commend you on an amazing event yesterday. I have to admit, this whole fundraising experience has been extremely emotional for me. I've been focusing on NF and thereby losing sleep worrying about [my daughter's] future way more than I'd like to. To be honest, I was a little worried about attending the walk and getting more upset. I actually had the best time. It was such a fun, positive event. I felt like everyone had so much fun and it was a great thank you to all of our supporters. You all do such incredible work. And the award for top-raising team...I was super excited to win the title and the plaque, I had no idea we'd get a bag full of awesome loot! Thanks so much for everything. A part of me wishes I had still never heard of NF, but since it's in my life to stay, I'm so glad that all of you are too. We are going on vacation next week and I'm taking the rest of the month off from NF, but later in the summer I have a group of amazing moms in my community ready to enlist and help me plan a local fundraiser.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.