Be iNFormed. Find material and educational opportunities.
Because it is so complex, it is vitally important for people with NF and their families to learn and understand as much as possible about neurofibromatosis.
For my family, getting involved with NF Midwest and fundraising really helped us on so many levels. We met other families who we could really relate to, our daughter met other kids with NF and we stayed informed and continued to learn about the disease. Also by fundraising, we knew we could help make a difference for the cause. NF Midwest has been a true support to us over the years.
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