Be iNFormed. Find material and educational opportunities.
Because it is so complex, it is vitally important for people with NF and their families to learn and understand as much as possible about neurofibromatosis.
Just wanted to say Friday night and Saturday were very much worth the 301 miles we drove, and the best meeting we have attended anywhere considering our NF2 interests. Of course doctors Marco Giovannani and Bradley Welling were responsible for the in depth knowledge and understandings we acquired. And Matt Hay’s account of his Ironman achievement was an inspiration for all. Our thanks to all on your team who helped with the planning.
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