Study on Tumor Visibility

Offered by: NIH/National Cancer Institute, Bethesda MD
Conducted by: Dr. Staci Martin Peron

You can help researchers better understand the experiences of people with NF1. The National Cancer Institute (NCI) is conducting a virtual study for individuals with visible plexiform or cutaneous neurofibromas, and you may be eligible to participate.

About the Study

The goal of this research is to improve how tumor visibility and appearance concerns are measured for children, teens, and adults with NF1. Your participation will help create better tools for future studies and clinical care. This is a paid study, and you will be compensated for your time.

What’s Involved?

Participation involves a single 60-90 minute virtual interview or focus group discussion.

Who Can Participate?

This study is looking for people who meet the following requirements:

  • Are age 8 or older
  • Have been diagnosed with NF1 (or are the parent of a child with NF1)
  • Have a plexiform or cutaneous neurofibroma that is visible to yourself or others
  • Have access to a device with an internet connection
  • Can read and communicate in English

The study team is committed to enrolling participants from diverse racial and ethnic backgrounds.

Get More Information

If you have questions or are interested in participating, please contact Dr. Staci Martin Peron at staci.martin@nih.gov.

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