Spring 2023 NF Midwest Newsletter

Check out our Spring 2023 NF Midwest Newsletter!

The highlights of this issue include…

Page 1

  • There were no newsletters in 2022, but there are other ways to keep up on NF Midwest news. Check it out!
  • An update on the naming of NF/SWN, and why.
  • About our new Care and Outreach Coordinator Sarah, and how she can help.
  • An important survey to keep your voice counted.

Page 2

  • Learn about our 2022 scholarship winners and future scholarship info.
  • Information on the upcoming Camp New Friends.
  • Read about the 2023 Young Leadership Program.

Page 3

  • Updated information on Parent Group meetings.
  • Learn about our new Adult Advisory Committee and how to get involved.
  • Research studies that are looking for participants.

Page 4

  • The iNFo fair will be back in person. Read about it for more information.
  • Top 5 fundraisers of the 2022 walks.
  • $25 Million approved for NF Research. Learn how!

Page 5

  • Register now for a walk and start fundraising!
  • 2023 walk fundraiser appreciation gifts.
  • Top fundraiser gets to choose the color of walk shirts. What will it be this year?

Page 6

  • Learn about D.I.Y. fundraising and try it yourself!
  • Win a 2-year lease on a Lexus with Birdies for Charity.
  • Read about E’s Hulksters D.I.Y. Trivia Night.

Page 7

  • World NF Day is May 17. Join us live as we celebrate.
  • Get ready to celebrate NF Awareness Month. Find ways to participate.
  • NF Midwest, along with others, funded research for the PEERS-NF Research Program.
  • Memorials received.

Back Page

  • Be sure to check out our wall of thanks! We’re sure we missed people, but please know that we appreciate you all!

Recent Posts

  • Where Belonging Can Lead: Rachel’s Journey with NF Midwest 

    Rachel was 13 when she first attended Camp NF.  At an age when so much was changing, camp gave her something she deeply needed: the chance to meet other young people who understood life with NF.  “NF camp gave me the opportunity to connect with others who had a shared experience and come to understand... Read More
  • McKenna Had an Idea. A Few Weeks Later, More Than 100 People Showed Up! 

    McKenna Smith had been thinking about doing something for the NF community. She wanted more people to understand NF, and she wanted to raise funds to help individuals and families find care, resources, support, and connection.  Then she saw NF Midwest’s Walk Your Way campaign and sent us a message.  From there, McKenna got to... Read More

Responses

Respond

Your email address will not be published. Required fields are marked *