Spring 2023 NF Midwest Newsletter

Check out our Spring 2023 NF Midwest Newsletter!

The highlights of this issue include…

Page 1

  • There were no newsletters in 2022, but there are other ways to keep up on NF Midwest news. Check it out!
  • An update on the naming of NF/SWN, and why.
  • About our new Care and Outreach Coordinator Sarah, and how she can help.
  • An important survey to keep your voice counted.

Page 2

  • Learn about our 2022 scholarship winners and future scholarship info.
  • Information on the upcoming Camp New Friends.
  • Read about the 2023 Young Leadership Program.

Page 3

  • Updated information on Parent Group meetings.
  • Learn about our new Adult Advisory Committee and how to get involved.
  • Research studies that are looking for participants.

Page 4

  • The iNFo fair will be back in person. Read about it for more information.
  • Top 5 fundraisers of the 2022 walks.
  • $25 Million approved for NF Research. Learn how!

Page 5

  • Register now for a walk and start fundraising!
  • 2023 walk fundraiser appreciation gifts.
  • Top fundraiser gets to choose the color of walk shirts. What will it be this year?

Page 6

  • Learn about D.I.Y. fundraising and try it yourself!
  • Win a 2-year lease on a Lexus with Birdies for Charity.
  • Read about E’s Hulksters D.I.Y. Trivia Night.

Page 7

  • World NF Day is May 17. Join us live as we celebrate.
  • Get ready to celebrate NF Awareness Month. Find ways to participate.
  • NF Midwest, along with others, funded research for the PEERS-NF Research Program.
  • Memorials received.

Back Page

  • Be sure to check out our wall of thanks! We’re sure we missed people, but please know that we appreciate you all!

Recent Posts

  • Skylar's Story: Strength, Courage & a New Beginning 

    Some journeys begin before a child can even walk. For Skylar, hers started at just 5 months old, when she broke her left leg. It would be the first of many chapters in a story defined not by hardship, but by an extraordinary spirit that refused to be held back.  A week after that initial... Read More
  • Building Something Bigger: Christina’s Commitment to the Columbia Walk4NF

    In Columbia, Missouri, the Walk4NF has become something families count on each year. It’s where people show up, find each other, and realize they’re not the only ones navigating life with NF.  That kind of connection didn’t always exist for Christina.  Neurofibromatosis has been part of her family for generations. Her grandmother had it. Her father had it, along with several... Read More

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