Spring 2023 NF Midwest Newsletter

Check out our Spring 2023 NF Midwest Newsletter!

The highlights of this issue include…

Page 1

  • There were no newsletters in 2022, but there are other ways to keep up on NF Midwest news. Check it out!
  • An update on the naming of NF/SWN, and why.
  • About our new Care and Outreach Coordinator Sarah, and how she can help.
  • An important survey to keep your voice counted.

Page 2

  • Learn about our 2022 scholarship winners and future scholarship info.
  • Information on the upcoming Camp New Friends.
  • Read about the 2023 Young Leadership Program.

Page 3

  • Updated information on Parent Group meetings.
  • Learn about our new Adult Advisory Committee and how to get involved.
  • Research studies that are looking for participants.

Page 4

  • The iNFo fair will be back in person. Read about it for more information.
  • Top 5 fundraisers of the 2022 walks.
  • $25 Million approved for NF Research. Learn how!

Page 5

  • Register now for a walk and start fundraising!
  • 2023 walk fundraiser appreciation gifts.
  • Top fundraiser gets to choose the color of walk shirts. What will it be this year?

Page 6

  • Learn about D.I.Y. fundraising and try it yourself!
  • Win a 2-year lease on a Lexus with Birdies for Charity.
  • Read about E’s Hulksters D.I.Y. Trivia Night.

Page 7

  • World NF Day is May 17. Join us live as we celebrate.
  • Get ready to celebrate NF Awareness Month. Find ways to participate.
  • NF Midwest, along with others, funded research for the PEERS-NF Research Program.
  • Memorials received.

Back Page

  • Be sure to check out our wall of thanks! We’re sure we missed people, but please know that we appreciate you all!

Recent Posts

  • A Conversation about NF1 and Everyday Skills

    Everyday Skills in NF1: What Parents Can Watch for and How to Help A practical resource for parents and caregivers from NF Midwest Parent Conversations Parents and caregivers affected by NF carry a lot of questions, and that’s normal.  Some are medical. Some are emotional. And many are practical:  That is why NF Midwest created NF Parent Conversations, a welcoming online... Read More
  • Meet the 2026 NF Midwest Scholarship Recipients 

    The NF Midwest Scholarship Program is proud to celebrate another year of supporting students with neurofibromatosis as they work toward their educational dreams.  Each year, NF Midwest awards scholarships to students across our six-state region. These students are pursuing their goals while also navigating life with NF, and we are honored to play a small... Read More

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