Spring 2023 NF Midwest Newsletter

Check out our Spring 2023 NF Midwest Newsletter!

The highlights of this issue include…

Page 1

  • There were no newsletters in 2022, but there are other ways to keep up on NF Midwest news. Check it out!
  • An update on the naming of NF/SWN, and why.
  • About our new Care and Outreach Coordinator Sarah, and how she can help.
  • An important survey to keep your voice counted.

Page 2

  • Learn about our 2022 scholarship winners and future scholarship info.
  • Information on the upcoming Camp New Friends.
  • Read about the 2023 Young Leadership Program.

Page 3

  • Updated information on Parent Group meetings.
  • Learn about our new Adult Advisory Committee and how to get involved.
  • Research studies that are looking for participants.

Page 4

  • The iNFo fair will be back in person. Read about it for more information.
  • Top 5 fundraisers of the 2022 walks.
  • $25 Million approved for NF Research. Learn how!

Page 5

  • Register now for a walk and start fundraising!
  • 2023 walk fundraiser appreciation gifts.
  • Top fundraiser gets to choose the color of walk shirts. What will it be this year?

Page 6

  • Learn about D.I.Y. fundraising and try it yourself!
  • Win a 2-year lease on a Lexus with Birdies for Charity.
  • Read about E’s Hulksters D.I.Y. Trivia Night.

Page 7

  • World NF Day is May 17. Join us live as we celebrate.
  • Get ready to celebrate NF Awareness Month. Find ways to participate.
  • NF Midwest, along with others, funded research for the PEERS-NF Research Program.
  • Memorials received.

Back Page

  • Be sure to check out our wall of thanks! We’re sure we missed people, but please know that we appreciate you all!

Recent Posts

  • What Is an ABLE Account?

    If you or someone you love is living with NF, you know the costs can add up: therapies, assistive devices, specialists, and more. An ABLE account is a savings tool built to help with exactly that. The Basics ABLE stands for Achieving a Better Life Experience. It’s a tax-advantaged savings account for people with disabilities.... Read More
  • Nothing to Fear: A Children’s Book on NF

    For young children with neurofibromatosis, medical appointments can feel big, unfamiliar, and sometimes scary. An eye exam, an MRI, a doctor’s visit, or even the mention of a needle can bring up questions that are hard for a small child to understand — especially between the ages of 3 and 7, when imagination is strong... Read More

Responses

Respond

Your email address will not be published. Required fields are marked *