General

Spring 2017 Neurofibromatosis Midwest Newsletter

Check out our Spring 2017 NF Midwest Newsletter!

The highlights of this issue include…

  • An announcement of research grants given to the University of Wisconsin/Madison and the University of Chicago
  • Info on our annual fall symposium
  • Announcement of our 2016 scholarship recipients and info for 2017 applications
  • Dates and info on our 2017 Great Steps 4NF Walks
  • Information on Camp New Friends
  • Lunch with the Docs
  • Do It Yourself (DIY) Fundraising 4NF
  • A listing of new articles available on our website
  • Various event announcements including support group meetings; SamJam4NF; Fort Wayne TinCaps Family Night; and Smiles for Sarah White Sox Outing
  • Introduction of new board member, Lesli Wegner

Plus much more!

SPRING 2017 NEWSLETTER

Recent Posts

  • Why Clinical Trials Matter, and Why They Matter Especially for NF

    Every treatment that exists today: every medication, every therapy, every breakthrough, started somewhere. It started with a question, a hypothesis, and eventually, a clinical trial. May 20 is National Clinical Trials Day, a moment to recognize the remarkable system that turns scientific ideas into real-world answers. For the NF community (patients, families, caregivers, and advocates)... Read More
    Karissa Haberkamp Research

  • Skylar's Story: Strength, Courage & a New Beginning 

    Some journeys begin before a child can even walk. For Skylar, hers started at just 5 months old, when she broke her left leg. It would be the first of many chapters in a story defined not by hardship, but by an extraordinary spirit that refused to be held back.  A week after that initial... Read More
    NF Midwest Highlighted Stories

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