This newsletter published in May 2016 features our new logo and a slightly new newsletter design. The highlights of this issue include…
An article on how NF Midwest is leading the fight for better options in treating dermal neurofibromas and the new procedural codes that we helped get approved; the exciting introduction of our new NF Navigator/Social Worker, Jasmine Mitchell who is dedicated to care; information on our work to secure federal funding for NF research; an announcement of our first two scholarship recipients; the introduction of three new board members, Pete Oswald, Denise Dulceak and Heather Reyes; plus much more!
If you or someone you love is living with NF, you know the costs can add up: therapies, assistive devices, specialists, and more. An ABLE account is a savings tool built to help with exactly that. The Basics ABLE stands for Achieving a Better Life Experience. It’s a tax-advantaged savings account for people with disabilities.... Read More
For young children with neurofibromatosis, medical appointments can feel big, unfamiliar, and sometimes scary. An eye exam, an MRI, a doctor’s visit, or even the mention of a needle can bring up questions that are hard for a small child to understand — especially between the ages of 3 and 7, when imagination is strong... Read More
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