This newsletter published in May 2016 features our new logo and a slightly new newsletter design. The highlights of this issue include…
An article on how NF Midwest is leading the fight for better options in treating dermal neurofibromas and the new procedural codes that we helped get approved; the exciting introduction of our new NF Navigator/Social Worker, Jasmine Mitchell who is dedicated to care; information on our work to secure federal funding for NF research; an announcement of our first two scholarship recipients; the introduction of three new board members, Pete Oswald, Denise Dulceak and Heather Reyes; plus much more!
Every treatment that exists today: every medication, every therapy, every breakthrough, started somewhere. It started with a question, a hypothesis, and eventually, a clinical trial. May 20 is National Clinical Trials Day, a moment to recognize the remarkable system that turns scientific ideas into real-world answers. For the NF community (patients, families, caregivers, and advocates)... Read More
Some journeys begin before a child can even walk. For Skylar, hers started at just 5 months old, when she broke her left leg. It would be the first of many chapters in a story defined not by hardship, but by an extraordinary spirit that refused to be held back. A week after that initial... Read More
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