Home / Blog / NF1 PN Pain Scale Research Study
Offered by: National Institutes of Health (NCI)
Conducted by: Dr. Pamela Wolters
Recruiting for children (8+ years), adolescents, and adults with NF1 and plexiform neurofibromas (pNFs) for a research study to complete pain questionnaires electronically over a two-week period from home.
Recent Posts
-
In Columbia, Missouri, the Walk4NF has become something families count on each year. It’s where people show up, find each other, and realize they’re not the only ones navigating life with NF. That kind of connection didn’t always exist for Christina. Neurofibromatosis has been part of her family for generations. Her grandmother had it. Her father had it, along with several...
Read More
-
When CJ was born, he was already making an impression. Courtney remembers working a long shift on the PCU floor before going into labor. CJ arrived three weeks early, strong-willed from the start. There were small details that stood out, like his slightly larger head, but at the time, he was simply their baby. They named him...
Read More
Responses