NF Midwest December Update

Check out NF Midwest’s December update. If you are connected with us, you should have received this in an email! If not, use one of our contact forms to connect with us.

The highlights of this update are various new and existing research studies looking for participants. These can range from simple surveys to a long study commitment. Of course, there is more than that in the update. Check it out!

Recent Posts

  • Why Clinical Trials Matter, and Why They Matter Especially for NF

    Every treatment that exists today: every medication, every therapy, every breakthrough, started somewhere. It started with a question, a hypothesis, and eventually, a clinical trial. May 20 is National Clinical Trials Day, a moment to recognize the remarkable system that turns scientific ideas into real-world answers. For the NF community (patients, families, caregivers, and advocates)... Read More
  • Skylar's Story: Strength, Courage & a New Beginning 

    Some journeys begin before a child can even walk. For Skylar, hers started at just 5 months old, when she broke her left leg. It would be the first of many chapters in a story defined not by hardship, but by an extraordinary spirit that refused to be held back.  A week after that initial... Read More

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