General

NF Midwest December Update

Check out NF Midwest’s December update. If you are connected with us, you should have received this in an email! If not, use one of our contact forms to connect with us.

The highlights of this update are various new and existing research studies looking for participants. These can range from simple surveys to a long study commitment. Of course, there is more than that in the update. Check it out!

Recent Posts

  • Barriers to Healthcare Access and Psychosocial Experiences in Adults with Neurofibromatosis Type 1

    Offered by: University of Colorado AnschutzConducted by: Katelyn Glowinski, genetic counseling student, master’s program This research study is designed to gain a better understanding of healthcare barriers faced by adults with Neurofibromatosis Type 1 (NF1), as well as evaluate any associations between these barriers and your self-reported neuropsychiatric or mental health status. If you join... Read More
    Karissa Haberkamp Active Studies

  • Where Belonging Can Lead: Rachel’s Journey with NF Midwest 

    Rachel was 13 when she first attended Camp NF.  At an age when so much was changing, camp gave her something she deeply needed: the chance to meet other young people who understood life with NF.  “NF camp gave me the opportunity to connect with others who had a shared experience and come to understand... Read More
    Jennifer Bulandr General

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