42 Years of Care and Ensuring No One Fights Alone!

Great News! $25 Million Secured for Neurofibromatosis Research in FY 2024

There’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically for the Neurofibromatosis Research Program (NFRP) in Fiscal Year (FY) 2024. This vital funding is a testament to the tireless efforts of NF Midwest and other advocacy organizations, and volunteers. The NFRP funding complements research funded by the National Institutes of Health (NIH) and provides a significant boost for accelerating progress.

While we celebrate this victory, the fight continues! Advocacy efforts for FY 2025 funding begin now.

Your continued support and efforts make this crucial research possible. Thank you for being a part of the solution!

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