Active Studies

Evaluation of Acceptance and Commitment Training (ACT)

Remote Research Study: Support for Caregivers of Children with RASopathies

Offered by: NIH/National Cancer Institute, Bethesda MD
Conducted by: Dr. Staci Martin Peron

A remote research study from the National Cancer Institute is evaluating Acceptance and Commitment Training (ACT), a method that has been effective in helping parents of individuals with other chronic conditions.

The study involves four virtual sessions over eight weeks and does not include any drugs or medication. Because the entire study is virtual, no travel is required. Compensation will be provided for participating.

Fathers, mothers, and other caregivers of all racial and ethnic backgrounds are encouraged to participate.

Who Can Participate?

  • 18 years or older
  • Caregiver or parent of a child with a RASopathy Diagnosis (such as NF1, Noonan Syndrome, Costello Syndrome, or other)
  • Experiencing parenting-related stress
  • Interested in receiving support virtually

Learn More & Get in Touch

For more information about the study, please contact:

Jayla Melvin, MLIS
Dr. Milly Curlee

RAS-parenting-flier2Download

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NF Midwest connects our community with various opportunities to participate in research that advances our understanding of neurofibromatosis.

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