Remote Research Study: Support for Caregivers of Children with RASopathies
Offered by: NIH/National Cancer Institute, Bethesda MD
Conducted by: Dr. Staci Martin Peron
A remote research study from the National Cancer Institute is evaluating Acceptance and Commitment Training (ACT), a method that has been effective in helping parents of individuals with other chronic conditions.
The study involves four virtual sessions over eight weeks and does not include any drugs or medication. Because the entire study is virtual, no travel is required. Compensation will be provided for participating.
Fathers, mothers, and other caregivers of all racial and ethnic backgrounds are encouraged to participate.
Who Can Participate?
- 18 years or older
- Caregiver or parent of a child with a RASopathy Diagnosis (such as NF1, Noonan Syndrome, Costello Syndrome, or other)
- Experiencing parenting-related stress
- Interested in receiving support virtually
Learn More & Get in Touch
For more information about the study, please contact:
Responses