Celebrating 35 Years

Stories

Noah – A Face of NF

Noah was 7 months old when he was diagnosed with NF1.  He is almost 3 years old now. Noah has cafe…

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Janna – A Face of NF

Our daughter Janna was diagnosed with neurofibromatosis type 1 when she was five months old. Doctors tell us that it…

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Ify – A Face of NF

My husband and I had never heard of NF1 until May 2015 when our daughter, Ifunanya or Ify (pronounced “eff-ee”),…

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Jay – A Face of NF

Jay, 10 Mos. Our sweet baby boy Jay was diagnosed with NF Type 1 in May of 2018 at six…

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Sam – A Face of NF

Sam, 33 I was diagnosed with neurofibromatosis type 1 (NF1) while being treated for scoliosis when I was 4 years…

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Levi – A Face of NF

Levi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…

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Ali – A Face of NF

I was diagnosed with neurofibromatosis type 2 (NF2) at the age of 10. Six Months after I was diagnosed, I…

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Jenny – A Face of NF

I was diagnosed with neurofibromatosis type 1 (NF1) when I was 16 years old. As a child in school, I suffered from…

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