Celebrating 35 Years

Providing Support

In the NF Midwest region no one is left to fight alone.

Providing Support and Building Community

NF Midwest is dedicated to ensuring that NO ONE in the Midwest living with the complicated disorders of NF1, NF2 or schwannomatosis FIGHTS ALONE. We have a dedicated social worker for adults with NF and for families. We provide tools to meet others and to build a community of support. We also fund kids to go to camp and provide academic scholarships to adults with NF.

NF Navigator/Support Program

NF Midwest’s NF Navigator program provides the assistance of a dedicated social worker to improve the ability to cope with issues related to NF and to improve the quality of life.

Our NF Navigator/Social Worker services offered to the NF Midwest community include, but are not limited to the following:

  • Assist in coordinating care
  • Understanding
  • Guidance
  • Reassurance
  • Navigating public benefits
  • Help finding a qualified doctor
  • Treatment options/clinical trial support
  • Managing mental health

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