In the NF Midwest region no one is left to fight alone.
NF Midwest is dedicated to ensuring that NO ONE in the Midwest living with the complicated disorders of NF1, NF2 or schwannomatosis FIGHTS ALONE. We have a dedicated social worker for adults with NF and for families. We provide tools to meet others and to build a community of support. We also fund kids to go to camp and provide academic scholarships to adults with NF.
NF Midwest’s NF Navigator program provides the assistance of a dedicated social worker to improve the ability to cope with issues related to NF and to improve the quality of life.
Our NF Navigator/Social Worker services offered to the NF Midwest community include, but are not limited to the following:
NF Midwest is a wonderful resource for us right here. They raise funds for local research clinics. They provide excellent NF informational packets and web based educational programs so people with NF in their lives can learn about the newest medical information and research discoveries about NF. They organize many fun events throughout our area for adults, children, and families to enjoy, to meet others, to share their story, and find support through friendships made. NF Midwest, as a smaller more local foundation, can provide support in a more personal way that is also very important to our well-being and hope.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.