Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
View our upcoming events and join us in making NF Midwest great!
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

Educational Events

Knowledge is Power! Build your arsenal.

Opportunities to Learn About NF

In the box to the right you will find upcoming educational events (if there are any and we’ve updated the website!). This includes events such as our annual iNFo Fair, Power Hours, or a casual “Lunch with the Doc” event or look for other opportunities to learn from the experts and each other!

The best way to stay up-to-date on anything is to join our private Facebook group (for people from our region) our our Facebook NF News group….they’re updated the most.

You may also use the search button below to search through our ever growing list of resources.

People Are Talking

I just wanted...tell you how fantastic the conference was on Saturday. Every speaker was informative and interesting and I got tons of information and learned so much from every speaker. It looked like you had a great turn out. Thank you to all your staff and to you for putting on such a great day.

- Symposium Comments from Angela

2015 NF Walks

Find NF Care

Get the best care! Find an experienced NF doctor/clinic in the NF Midwest region.

Be iNFormed

Knowledge is power! Learn and understand as much as possible about neurofibromatosis.

Community Support

Don’t fight alone! Meet others in the NF community to learn and share experiences.

Donate

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.