Celebrating 35 Years


Steve – A Face of NF

I am 67 years old and I have NF2. When I was 45, I had my first acoustic neuroma (now…

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Levi – A Face of NF

Levi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…

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Taylor – A Face of NF

I have been running competitively for almost 2 years and love it. It helps me relax, great stress reliever gave…

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Rick – A Face of NF

My name is Rick. I wasn’t diagnosed with NF Type 1 until I was 32 years old. I had no…

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Marissa- A Face of NF

Hi! I was diagnosed with neurofibromatosis type 1 when I was 3 years old.  I am the only one in…

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Tori – A Face of NF

I inherited NF1 from my father. I was diagnosed shortly after my birth. The doctor noticed that I had flat,…

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Collin- A Face of NF

Hi, my name is Jean. My son, Collin, was diagnosed with NF1 at the age of 1. He was a…

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Jean – A Face of NF

  I have NF1. I was born 1970 as an identical twin. My mom had two boys before us and…

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Tim – A Face of NF

I am 64 years old with no prior neurofibromatosis  family history and none of my 6 siblings have NF, making…

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