
Steve – A Face of NF
I am 67 years old and I have NF2. When I was 45, I had my first acoustic neuroma (now…
Read MoreI am 67 years old and I have NF2. When I was 45, I had my first acoustic neuroma (now…
Read MoreLevi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…
Read MoreI have been running competitively for almost 2 years and love it. It helps me relax, great stress reliever gave…
Read MoreMy name is Rick. I wasn’t diagnosed with NF Type 1 until I was 32 years old. I had no…
Read MoreHi! I was diagnosed with neurofibromatosis type 1 when I was 3 years old. I am the only one in…
Read MoreI inherited NF1 from my father. I was diagnosed shortly after my birth. The doctor noticed that I had flat,…
Read MoreHi, my name is Jean. My son, Collin, was diagnosed with NF1 at the age of 1. He was a…
Read MoreI have NF1. I was born 1970 as an identical twin. My mom had two boys before us and…
Read MoreGrowing up I always knew I was different. I had spots all over my body. I actually thought for…
Read MoreI am 64 years old with no prior neurofibromatosis family history and none of my 6 siblings have NF, making…
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