Support those dedicated people who have set-up their own events to raise NF awareness and funds.
Listed here are fundraising and awareness-raising events created by our members to support neurofibromatosis and NF Midwest’s mission to improve the lives of children and adults with neurofibromatosis.
It takes special, dedicated people to take their valuable time and resources to raise funds and awareness. We appreciate them all for their efforts and hope that you will support them in whatever way you can.
If you’d like to learn about how you can hold your own event or campaign please look for more information here.
Thank you so much for the article. I really appreciate both the call reaching out and the article about Legius. I have been so impressed with the friendliness and helpfulness of everyone I've spoken with at NF Midwest. As you know, the unknown before and after a diagnosis can be scary. Thanks for wanting to help our family through it.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.