Support those dedicated people who have set-up their own events to raise NF awareness and funds.
Listed here are fundraising and awareness-raising events created by our members to support neurofibromatosis and NF Midwest’s mission to improve the lives of children and adults with neurofibromatosis.
It takes special, dedicated people to take their valuable time and resources to raise funds and awareness. We appreciate them all for their efforts and hope that you will support them in whatever way you can.
Kalona is selling her art and plants to support NF1. Her granddaughter has neurofibromatosis and I am trying to help by creating art and selling plants.Visit Fundraiser Page
Every year in August or September Sam and his family hold an all-day music and brew festival in Carlinville, IL.Visit Fundraiser Page
Every year since 2012 Steve Reason has organized NF Midwest’s participation in John Deere’s Birdies for Charity program every year.Visit Fundraiser Page
January 30, 2016
Always looking to give back and to help others, Aydin’s family and friends put together a 9 pin bowling party to raise funds for their Chippewa Falls Great Steps 4NF team.Visit Fundraiser Page
Raised $8,600 with goal of $8,000
Thank YOU for all that you do for people with NF and their families! It brings tears to my eyes to see how much was raised for this cause. My brother had NF which turned cancerous and he passed away February 10, 2011 after a not-so-easy life with NF. My sister and father also struggled with this disease, then cancer and passed away in 1991 and 2008 respectively. This was our first NF Walk and we look forward to next year's. We were impressed with the organization of the walk, the DJ, the food, the prize baskets, the facilities and of course all of the care that went into it. My remaining sister and I, and our families, are determined to help out in any way to help cure this disease or assist other families who have NF in their lives. We look forward to raising more funds next year and dressing up our team! Our goal as a team is to raise a lot more money next year!
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.