Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
View our upcoming events and join us in making NF Midwest great!
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

Third Party (DIY) Events

Support those dedicated people who have set-up their own events to raise NF awareness and funds.

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Events
#DoIt4NF (DIY) Events

#DoIt4NF(DIY) Events

Listed here are fundraising and awareness-raising events created by our members to support neurofibromatosis and NF Midwest’s mission to improve the lives of children and adults with neurofibromatosis.

It takes special, dedicated people to take their valuable time and resources to raise funds and awareness. We appreciate them all for their efforts and hope that you will support them in whatever way you can.

If you’d like to learn about how you can hold your own event or campaign please look for more information here.

INFORMATION ON CREATING A #DOIT4NF (DIY) EVENT

People Are Talking

Thanks again for directing the annual NF symposium. Your hard work & dedication to the cause is really appreciated. I stayed to the end and participated in the Lessons Learned/Focus Group. I am So glad I did. I learned so much & met amazing people who want to help my wife with her struggles w/ Schwannomatosis. All of this wouldn't be possible without dedicated people like yourself who give so much to the cause.

- Symposium Comments from Brad

Find NF Care

Get the best care! Find an experienced NF doctor/clinic in the NF Midwest region.

Be iNFormed

Knowledge is power! Learn and understand as much as possible about neurofibromatosis.

Community Support

Don’t fight alone! Meet others in the NF community to learn and share experiences.

Donate

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.