Support those dedicated people who have set-up their own events to raise NF awareness and funds.
Listed here are fundraising and awareness-raising events created by our members to support neurofibromatosis and NF Midwest’s mission to improve the lives of children and adults with neurofibromatosis.
It takes special, dedicated people to take their valuable time and resources to raise funds and awareness. We appreciate them all for their efforts and hope that you will support them in whatever way you can.
If you’d like to learn about how you can hold your own event or campaign please look for more information here.
NF Midwest is a wonderful resource for us right here. They raise funds for local research clinics. They provide excellent NF informational packets and web based educational programs so people with NF in their lives can learn about the newest medical information and research discoveries about NF. They organize many fun events throughout our area for adults, children, and families to enjoy, to meet others, to share their story, and find support through friendships made. NF Midwest, as a smaller more local foundation, can provide support in a more personal way that is also very important to our well-being and hope.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.