Support those dedicated people who have set-up their own events to raise NF awareness and funds.
Listed here are fundraising and awareness-raising events created by our members to support neurofibromatosis and NF Midwest’s mission to improve the lives of children and adults with neurofibromatosis.
It takes special, dedicated people to take their valuable time and resources to raise funds and awareness. We appreciate them all for their efforts and hope that you will support them in whatever way you can.
If you’d like to learn about how you can hold your own event or campaign please look for more information here.
4 years ago, my daughter was diagnosed with Neurofibromatosis at the age of 4 months. I had never heard of it. I was given a brochure for NF Midwest from her doctor and I signed up for their symposium. Shortly thereafter, I received a call from the Director, Diana. She let me know that her husband and two children have NF as well. She asked if I had any questions, and let me know that they were there for us. I had just received shocking, frightening news about my infant child. I didn't know where to turn, and suddenly I had a place to go for answers and help. NF Midwest has been there for my family every step of the way. We are so grateful for the work they do, and proud to support it.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.