Celebrating 35 Years

Participate in Research

NF1 Pain Management Questionnaire

Dr. Frank Buono with Yale University School of Medicine, in the Department in Psychiatry is looking for volunteers interested in…

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Indiana Quality of Life Study

THIS STUDY IS NOW FULL! Researchers at the Indiana University are currently seeking both parents and children with Neurofibromatosis Type…

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Important Survey

The Department of Genetics at Stevenson University is conducting a survey on the psychological effects of “looking different” which was…

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