Celebrating 35 Years

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Survey of Neurofibroma Removal

We are conducting an important survey of patients with NF1 about electrosurgical removal of neurofibromas (dermal (cutaneous)) and/or subcutaneous tumors…

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NF1 and Scoliosis Genetic Study

Genetic Evaluation for the Scoliosis Gene(s) in Patients with Neurofibromatosis 1 and Scoliosis Participants are needed for  a study entitled:…

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NF1 and Breast Cancer Study

Call for Study Participants The Department of Medical Genetics at Henry Ford Hospital in Detroit, MI is conducting a study…

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Special Neurofibromatosis Blood Draw

NF Midwest Symposium Attendees Give Blood for Research. Those who attended Neurofibromatosis Midwest’s Symposium on Oct. 13th had a rare…

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