Celebrating 35 Years

Participate in Research

NF1 and Breast Cancer Study

Call for Study Participants The Department of Medical Genetics at Henry Ford Hospital in Detroit, MI is conducting a study…

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Special Neurofibromatosis Blood Draw

NF Midwest Symposium Attendees Give Blood for Research. Those who attended Neurofibromatosis Midwest’s Symposium on Oct. 13th had a rare…

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Schwannomatosis International Database

A consortium of medical institutions is collecting limited information on schwannomatosis patients. This includes their symptoms, their management and medication,…

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NF Registry

If you or your child has been diagnosed with neurofibromatosis (NF) please join the NF Registry today. The key to…

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NF1 Washington University Registry

The Washington University Neurofibromatosis (NF) Center has launched a unique internet-based NF1 Registry, which is a 30-minute questionnaire. This questionnaire…

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NF2 Clinical Trial

In 2012 House Research Institute will sponsor a three-year, Phase II clinical trial, evaluating the efficacy of the drug RAD001…

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Plexiform Drug Trial

If you have Type 1 Neurofibromatosis with Plexiform Neurofibromas you may be interested in NF1 Plexiform treatment studies for children…

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