Adolescents Resiliency with NF Study
The Family Center for Neurofibromatosis and the Integrated Brain Health Clinical and Research Program (IBHCRP) at the Massachusetts General Hospital are conducting a research study to compare 2 programs that teach stress and symptom management skills for adolescents with NF1 and NF2. They are seeking adolescents ages 12-17 who have a diagnosis of neurofibromatosis 1 (NF1) or neurofibromatosis 2 (NF2). The Department of Defense is paying for this study.
You will participate in 8 group sessions led by an MGH psychologist with expertise in NF. Completion of questionnaires with help from study staff over the phone at the beginning, end, 6 months and 12 months after the sessions. Participants will learn about stress management (both related to NF as well as general life stress).
- Sessions will take place from your home using your computer and web cam, using Vidyo, a secure software program for live video-conferences, that we will help you install at no cost to you.
- Sessions are 45 minutes long and held once a week.
- This study DOES NOT involve taking medication.
- This study DOES NOT involve travel to MGH.
- There is no cost to participate and your adolescent could receive up to $70.00 of compensation.
NOTE: There is also a resiliency study for adults.