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Resiliency for Adolescents with NF1 and NF2

Adolescents Resiliency with NF Study

The Family Center for Neurofibromatosis and the Integrated Brain Health Clinical and Research Program (IBHCRP) at the Massachusetts General Hospital are conducting a research study to compare 2 programs that teach stress and symptom management skills for adolescents with NF1 and NF2. They are seeking adolescents ages 12-17 who have a diagnosis of neurofibromatosis 1 (NF1) or neurofibromatosis 2 (NF2). The Department of Defense is paying for this study.

You will participate in 8 group sessions led by an MGH psychologist with expertise in NF. Completion of questionnaires with help from study staff over the phone at the beginning, end, 6 months and 12 months after the sessions.  Participants will learn about stress management (both related to NF as well as general life stress).

  • Sessions will take place from your home using your computer and web cam, using Vidyo, a secure software program for live video-conferences, that we will help you install at no cost to you.
  • Sessions are 45 minutes long and held once a week.
  • This study DOES NOT involve taking medication.
  • This study DOES NOT involve travel to MGH.
  • There is no cost to participate and your adolescent could receive up to $70.00 of compensation.

Please see the attached flyer for additional details or contact the study coordinator, Mira Reichman at , or the principal investigator, Ana-Maria Vranceanu at .

NOTE: There is also a resiliency study for adults.

RESILIENCY FOR NF (ADOLESCENTS) FLYER

RESILIENCY FOR NF (ADULT) FLYER

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Comments (6)

    • Hello, Sonya; As I understand it, there is a requirement to have a computer as there are video conferences involved in the study. You could contact the study authors, their info is in the flyer that is linked to our article, to determine if there is a way you could participate. Good luck,
      Paul

    • Hi – please click on the link in the article for instructions to apply for the study. Thanks,
      Paul

    • Hello, Helena – please refer to the flyer and the contact info for the authors. You can contact them as to specifics for participation. Thanks, Paul

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