Parents of 3 to 18 Year Olds with NF1 Needed!
Are you the parent/caregiver of a child with neurofibromatosis type 1 (NF1) between the ages of 3-18 years? The MIND group at the University of Minnesota want to hear from you!
Researchers at the University of Minnesota, with funding from NF Midwest and NF Upper Midwest, are working to develop therapeutic programs to support the unique social-emotional, behavioral, and learning needs of children with NF1. They want to learn about areas of concern that you have for your child and what types of programs you might be interested in participating in to address those concerns.
If you’re willing, please use the link below to provide your answers to a short (5 minute) survey about your child’s social, emotional, behavioral and academic needs. You have the option to answer the survey anonymously, or if you want to provide your contact information to learn about further development of the programs that is also possible!
The information you provide will be help inform the development of programs that could benefit children and families like yours.
Here is a link to the survey: http://j.mp/2sUt7rR
You will also have the option of being included in a drawing for a gift card to thank you for your feedback! There will be 6 prizes drawn from among interested survey participants:
- 1 Grand Prize: a $100 Target gift card
- 2 Second Level Prizes: $50 Target gift cards
- 3 Third Level Prizes: $25 Target gift cards
Thank you for your consideration!
Researchers on this study include Rene Pierpont, PhD, LP; Rebekah Hudock, PhD, LP; Christopher Moertel, MD.
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