Resiliency for NF Study for Adults
The Family Center for Neurofibromatosis and the Integrated Brain Health Clinical and Research Program (IBHCRP) at the Massachusetts General Hospital are conducting a research study to compare 2 programs that teach stress and symptom management skills for adults with NF1, NF2, or schwannomatosis. They are seeking people ages 18 and older who have a diagnosis of neurofibromatosis 1 (NF1), neurofibromatosis 2 (NF2), or schwannomatosis. The Department of Defense is paying for this study.
You will participate in 8 group sessions led by an MGH psychologist with expertise in NF. Then, you will need to complete questionnaires on your own computer at the beginning, end, 6 months and 12 months after the sessions. Participants will learn stress and symptom management skills that you can continue to use after the study
–Sessions will take place from your home using your computer and web cam, using Vidyo, a secure software program for live video-conferences, that they will help you install at no cost to you.
–Sessions are 1.5 hours long and held once a week.
–This study DOES NOT involve taking medication.
–This study DOES NOT involve travel to MGH.
–There is no cost to participate.
If you would like to learn more about this research study, please contact the study coordinator, Mira Reichman, , or the principal investigator, Ana-Maria Vranceanu, .
NOTE: There is also a resiliency study for adolescents.