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Resiliency for NF Study for Adults

Resiliency for NF Study for Adults

The Family Center for Neurofibromatosis and the Integrated Brain Health Clinical and Research Program (IBHCRP) at the Massachusetts General Hospital are conducting a research study to compare 2 programs that teach stress and symptom management skills for adults with NF1, NF2, or schwannomatosis. They are seeking people ages 18 and older who have a diagnosis of neurofibromatosis 1 (NF1), neurofibromatosis 2 (NF2), or schwannomatosis. The Department of Defense is paying for this study.

You will participate in 8 group sessions led by an MGH psychologist with expertise in NF. Then, you will need to complete questionnaires on your own computer at the beginning, end, 6 months and 12 months after the sessions. Participants will learn stress and symptom management skills that you can continue to use after the study

–Sessions will take place from your home using your computer and web cam, using Vidyo, a secure software program for live video-conferences, that they will help you install at no cost to you.

–Sessions are 1.5 hours long and held once a week.

–This study DOES NOT involve taking medication.

–This study DOES NOT involve travel to MGH.

–There is no cost to participate.

If you would like to learn more about this research study, please contact the study coordinator, Mira Reichman, , or the principal investigator, Ana-Maria Vranceanu, .

NOTE: There is also a resiliency study for adolescents.

RESILIENCY FOR NF (ADULT) FLYER

RESILIENCY FOR NF (ADOLESCENTS) FLYER

 

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Comments (14)

    • Hello, Connie. Please go to the article and click on the link in the article to the flyer. It has instructions as to how to participate in the study. Thanks,
      Paul

    • Hello; Please click on the link that is embedded in the article for instructions how to apply for the study. Thanks,
      Paul

    • Hello; Please click on the link that is embedded in the article for instructions how to apply for the study. Thanks,
      Paul

    • Hello; Please click on the link that is embedded in the article for instructions how to apply for the study. Thanks,
      Paul

    • Hello; Please click on the link that is embedded in the article to apply for the study. Thanks,
      Paul

    • Hi – at the bottom of the article are two yellow buttons for the adult and adolescent study flyers, respectively. Please click on that and it will have instructions on the flyer as to how to contact the studies’ authors to enroll. Thanks

  • Hello I have NF can you please explain the purpose of the Study if there is no medication to be taken? I am not sure I understand the study. Thank you so much I am sorry I am not understanding. 😊

    • Hello, Celeste – please see the contact info in the flyers for the two studies. I am sure they can answer any questions that you might have for participation. Thanks, Paul

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