
Using Mindfulness for Pain in Neurofibromatosis (ACT Study for Pain)
Life can feel a bit like a juggling act some days. Too often, we find ourselves trying so hard to…
Read MoreLife can feel a bit like a juggling act some days. Too often, we find ourselves trying so hard to…
Read MoreTHIS STUDY IS NOW FULL! Researchers at the Indiana University are currently seeking both parents and children with Neurofibromatosis Type…
Read MoreWho are the people most important to you? What things matter most to you? How do you want to be…
Read MoreWe’re very excited to announce that we have awarded the Martin Ginsberg grant to support neurofibromatosis research at the University…
Read MoreHelp researchers know what people with NF1- associated Plexiform Neurofibromas need! If you or your child has NF1 and a…
Read MoreThanks to dedication and passionate outreach of our NF community and the generosity of our donors, we are able to announce that…
Read MoreLast week representatives of NF Midwest, along with members of other NF organizations, stormed Capitol Hill in Washington DC asking for support…
Read MoreResearchers at Indiana University are creating a survey on how having NF1 affects people’s health and well-being. This tool will become…
Read MoreOn February 8th and 9th, NF Midwest executive director Diana Haberkamp and others will be the visiting congressional offices of…
Read MoreBig NF news out of Washington, D.C. today! Thanks to your dedicated and passionate outreach – your letters and emails,…
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