Celebrating 35 Years

Indiana Quality of Life Study


Researchers at the Indiana University are currently seeking both parents and children with Neurofibromatosis Type 1 (NF1). Dr. Swigonski and her team are conducting a study to develop a health related quality of life instrument for NF1 to better understand and measure how NF1 affects people’s health and well-being.

Eligibility Requirements:

  • Children ages 5-17 years old with NF1 & their parents.
  • Young adults ages 18-25 years old with NF1 & their parents.
  • Must be living in the United States.

What does this study involve?

  • Simply answer surveys online.


  • $10 gift card for every participant after completion of surveys.

For more information, please contact the team:
Phone: 317-278-0534

THIS STUDY IS NOW FULL. We will let you know about any upcoming opportunities.

Please follow and like us:

Comments (2)

Leave a Reply

Your email address will not be published. Required fields are marked *

fifteen − two =

<< View More

Get the Latest NF News & Updates

Sign up for our blog and always be up-to-date with Neurofibromatosis