42 Years of Care and Ensuring No One Fights Alone!

Indiana Quality of Life Study

THIS STUDY IS NOW FULL!

Researchers at the Indiana University are currently seeking both parents and children with Neurofibromatosis Type 1 (NF1). Dr. Swigonski and her team are conducting a study to develop a health related quality of life instrument for NF1 to better understand and measure how NF1 affects people’s health and well-being.

Eligibility Requirements:

  • Children ages 5-17 years old with NF1 & their parents.
  • Young adults ages 18-25 years old with NF1 & their parents.
  • Must be living in the United States.

What does this study involve?

  • Simply answer surveys online.

Compensation?

  • $10 gift card for every participant after completion of surveys.

For more information, please contact the team:
Email:
Phone: 317-278-0534

THIS STUDY IS NOW FULL. We will let you know about any upcoming opportunities.

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