Indiana Quality of Life Study
THIS STUDY IS NOW FULL!
Researchers at the Indiana University are currently seeking both parents and children with Neurofibromatosis Type 1 (NF1). Dr. Swigonski and her team are conducting a study to develop a health related quality of life instrument for NF1 to better understand and measure how NF1 affects people’s health and well-being.
- Children ages 5-17 years old with NF1 & their parents.
- Young adults ages 18-25 years old with NF1 & their parents.
- Must be living in the United States.
What does this study involve?
- Simply answer surveys online.
- $10 gift card for every participant after completion of surveys.
For more information, please contact the team:
THIS STUDY IS NOW FULL. We will let you know about any upcoming opportunities.
I have a 9 year old son with NF1 & I also have NF1, but did not know it till after I had my son. I have three other children who don’t have it.
Daughter 25 yrs. NF1
Son 18 yrs. NF1