Celebrating 35 Years

RAISE YOUR VOICE for Neurofibromatosis Research!

Now is the time to email YOUR members of the Senate and House of Representatives to ask for their support of NF research for fiscal year 2018.

To help express the need for federal funds for NF research, Congressman Luis Gutierrez (D-IL), Congressman Glenn Grothman (R-WI) and Senator Edward Markey (D-MA) are circulating Dear colleague letters seeking support for NF research in fiscal year 2018. The first letter requests $15 million for the Army’s NF Research Program in the Defense Appropriations bill. The second letter requests inclusion of report language on NF research at the National Institutes of Health in the Labor HHS-Education Appropriations bill.

It just takes two minutes to encourage YOUR Congressional members to add their name to these letters by the March 29 deadline.

Calling your Congressional members has the most affect, but you can also email them or use this simple form.


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