42 Years of Care and Ensuring No One Fights Alone!


Funding Through the CDMRP By State

Every year NF Midwest staff and volunteers travel to Washington, DC to advocate for research dollars for neurofibromatosis and schwannomatosis through the…

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NF1 Pain Management Questionnaire

Dr. Frank Buono with Yale University School of Medicine, in the Department in Psychiatry is looking for volunteers interested in…

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Selumetinib Research Question

The following is a blog by Dr. Luiz Rodrigues. Originally posted in Portuguese on January 13, 2017. Additions and translation…

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