We Need Your 2017 Personal Stories for Congress
On February 6th and 7th, NF Midwest executive director Diana Haberkamp and others will be the visiting congressional offices of your Senators and Representatives in Washington, DC to ask for support for NF research through the National Institutes of Health (NIH) and the Department of Defense’s (DOD) Congressionally Directed Medical Research Program (CDMRP).
If we want our representatives to care, we need to walk in to our meetings with personal letters from people who have NF or care about someone with NF. This can be anyone…friends, family, neighbors, co-workers, etc.
Please take a moment today to write a letter about how NF affects you or someone you love and to share this with others asking them to write also.
Please create a copy of the letter for each of your TWO senators and for your representative. You may look them up at whoismyrepresentative.com. You must also include your address and name in the letter. If you can include a photo that adds impact. Here is a sample of a letter.
Please, get them to us as soon as possible via one of the options below.