We Need Your 2016 Personal Stories for Congress
On February 8th and 9th, NF Midwest executive director Diana Haberkamp and others will be the visiting congressional offices of…
Read MoreOn February 8th and 9th, NF Midwest executive director Diana Haberkamp and others will be the visiting congressional offices of…
Read MoreBig NF news out of Washington, D.C. today! Thanks to your dedicated and passionate outreach – your letters and emails,…
Read MoreThursday and Friday, December 3rd and 4th, were just amazing days for me, NF Midwest and the entire NF Community….
Read MoreNF Midwest has partnered with CTF to promote the NF Registry The NF Registry is a database where anyone who…
Read MoreThe House of Representatives is in budget negotiations and we need people to contact their Congressman NOW and ask them to…
Read MoreCoping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have…
Read MoreThe Department of Genetics at Stevenson University is conducting a survey on the psychological effects of “looking different” which was…
Read MoreBonnie Klein-Tasman, Ph.D and her team at the University of Wisconsin-Milwaukee are looking for children ages 9 to 13 with…
Read MorePeople with neurofibromatosis type 1 have a higher incidence of many different complications. Tumor growth and learning disabilities are especially…
Read MoreAt NF Midwest’s annual symposium in October 2014 we invited Eva Dombi, MD, from the National Cancer Institute to present…
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