UPDATE – New Openings for this Study – Improving Peer Relationships in Teens with NF1
UPDATE – – As of Friday, February 12, U of W-Milwaukee will start a second group for this study in March. They have had a great response to the initial study and have a few slots available in the next phase. This will be part of a randomized clinical trial, so half of the eligible participants will be randomly assigned to start attending in March with the half on the waiting list to start attending the group in September. Please see our original post following to apply for the study. If interested in participating, please contact the researchers directly and their contact information can be found in the below link.
ORIGINAL POST – – Are you interested in participating in a new study to examine the effectiveness of a telehealth group for improving peer relationships for teens with NF1? Our friends with the University of Wisconsin – Milwaukee Department of Psychology are beginning a new study and are seeking 12-17-year-olds with NF1 and a parent/caregiver. Participation involves the teen and parent to complete a virtual intake session and then attend 16 weekly telehealth sessions over Zoom for 90 minutes each week. At the conclusion of participation, they will need to complete questionnaires. Teens and parents will attend separate telehealth sessions simultaneously
PEERS for Adolescents is an evidence-based social skills intervention for motivated teens in middle and high school who are interested in making and keeping friends, handling conflict and rejection. This program has been shown to be helpful with children with other diagnoses and the study will examine the usefulness in NF1.
If you would like to participate, please open the link below for the study flyer and contact the Child Neurodevelopment Research Lab at UWM-their phone number and e-mail address can be found there.
This study is funded by a grant from NF Midwest.