Celebrating 35 Years

We Need Your Personal Letters for Congress

In February, NF Midwest staff and volunteers will be meeting virtually with the staff of some of our Senators and Representatives to discuss funding for NF research through the Congressionally Directed Medical Research Program (CDMRP) and to continue encouraging research through the National Institutes of Health.

If we want our members of Congress to take notice, they need stories from their constituents!  This can be anyone…friends, family, neighbors, co-workers, etc. 

Please take a moment TODAY to write a letter about how NF affects you or someone you love, and ask others (like grandparents and friends) to write also. Try to make the letters as personal as possible and include at least one small paragraph about NF research and why it’s important to you. You can find an example HERE.

Simply write one letter in Microsoft Word or directly in an email and include your address and full name. We’ll look up who your Representative and Senators are and get it to them. If you can, include a photo that adds impact.

Email your letter to us at .

Also, if you’re interested in possibly attending meeting with us virtually, please let us know. We MAY be able to set that up.

Open a Sample Letter in Word

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