$25 Million for NF & SWN!

$25 million has been allocated specifically for the Neurofibromatosis Research Program (NFRP) in the Fiscal Year 2023 Omnibus appropriates bill that was passed by the House, December 23rd! It only awaits the President’s signature to be final.

That’s $5 million more than last year!!

Every year NF Midwest and other NF organizations and volunteer advocates work very hard to secure this vital funding for neurofibromatosis and schwannomatosis research. This funding and research are separate from the work that is also funded and done through the National Institutes of Health and is a larger amount than usual.

It took a long time to get this bill done this year and we’re already starting in January to drum up support for funding in 2024!

The work of securing this funding is only made possible by the donations we have received from donors and the work of our fundraisers.

Thank you to all! You made this happen!

Recent Posts

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    Offered by: University of Colorado AnschutzConducted by: Katelyn Glowinski, genetic counseling student, master’s program This research study is designed to gain a better understanding of healthcare barriers faced by adults with Neurofibromatosis Type 1 (NF1), as well as evaluate any associations between these barriers and your self-reported neuropsychiatric or mental health status. If you join... Read More
  • Where Belonging Can Lead: Rachel’s Journey with NF Midwest 

    Rachel was 13 when she first attended Camp NF.  At an age when so much was changing, camp gave her something she deeply needed: the chance to meet other young people who understood life with NF.  “NF camp gave me the opportunity to connect with others who had a shared experience and come to understand... Read More

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