$25 Million for NF & SWN!

$25 million has been allocated specifically for the Neurofibromatosis Research Program (NFRP) in the Fiscal Year 2023 Omnibus appropriates bill that was passed by the House, December 23rd! It only awaits the President’s signature to be final.

That’s $5 million more than last year!!

Every year NF Midwest and other NF organizations and volunteer advocates work very hard to secure this vital funding for neurofibromatosis and schwannomatosis research. This funding and research are separate from the work that is also funded and done through the National Institutes of Health and is a larger amount than usual.

It took a long time to get this bill done this year and we’re already starting in January to drum up support for funding in 2024!

The work of securing this funding is only made possible by the donations we have received from donors and the work of our fundraisers.

Thank you to all! You made this happen!

Recent Posts

  • A Conversation about NF1 and Everyday Skills

    Everyday Skills in NF1: What Parents Can Watch for and How to Help A practical resource for parents and caregivers from NF Midwest Parent Conversations Parents and caregivers affected by NF carry a lot of questions, and that’s normal.  Some are medical. Some are emotional. And many are practical:  That is why NF Midwest created NF Parent Conversations, a welcoming online... Read More
  • Meet the 2026 NF Midwest Scholarship Recipients 

    The NF Midwest Scholarship Program is proud to celebrate another year of supporting students with neurofibromatosis as they work toward their educational dreams.  Each year, NF Midwest awards scholarships to students across our six-state region. These students are pursuing their goals while also navigating life with NF, and we are honored to play a small... Read More

Responses

Respond

Your email address will not be published. Required fields are marked *