
iNFo Fair 2019: NF2 BioSolutions
NF Midwest is pleased and excited to have Mr. John Manth presenting at our November Symposium. As a father and…
NF Midwest is pleased and excited to have Mr. John Manth presenting at our November Symposium. As a father and…
We’re so excited to have a family and kid favorite, Sandra Cushner-Weinstein LICSW, returning to speak at our November 9th…
If you’re paying any attention to medical research you’ve probably been hearing more and more about gene editing and gene…
Our 2018 financial statement is complete and we’ve taken time to look back at the year in review! It was…
For many newly diagnosed NF2 patients the first question that usually comes to mind is “Am I going to lose…
Frank Buono PhD, from the Department of Psychiatry at Yale School of Medicine and longtime member and supporter of NF…
My name is Evita Ali and I have NF1. I was diagnosed with neurofibromatosis when I was 30 years of…
I joined the Army at 19 years old. I did all the training and arrived at my duty station. In…
My sixteen-year-old son began getting café au lait spots at two months old. Our pediatrician at the time gave us…
My STRONG and POSITIVE Sarah was born with NF1. Sarah has had 12 surgeries, 14 chemo sessions, 58 MRI’s, and…
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