42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
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“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
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“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
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“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
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“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
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NF Midwest Symposium and iNFo Fair

John Manth will talk about the work of NF2 BioSolutions

iNFo Fair 2019: NF2 BioSolutions

Posted By NF Midwest | On October 21st, 2019

NF Midwest is pleased and excited to have Mr. John Manth presenting at our November Symposium. As a father and dedicated advocate for his daughter, Leah, diagnosed with NF2, John will be enlightening and educating us about NF2 BioSolutions, an organization only a year old which has developed a strategy to support the mission of finding a gene therapy for NF2. John serves on the board of directors of NF2 BioSolutions, as well as NF Network and NF Northeast, bringing years of expertise in personally navigating and supporting the research and science involved in the evolution of the management of this disease.

It is critical that we update ourselves in the direction that NF2 BioSolutions is leading us!

LEARN MORE ABOUT the iNFo Fair