SMART-NF1 Project

Parent’s May Earn $10. Kids 13-17 May Earn $210.

Florida State University College of Medicine is conducting a study to improve understanding of cognitive, behavioral, and socioeconomic function in the daily lives of adolescents with NF1.

Participants must have a diagnosis of NF1, be 13-17 years old, have a third-grade or higher level of English comprehension, reside in the U.S., and have access to a smartphone. Participants and parents will be paid.

If interested, please complete this brief screening survey https://redcap.link/SMART-NF1. If you have questions, please email dearlab@med.fsu.edu. 

If you…

  • Have a diagnosis of NF1
  • Are 13-17 years old
  • Have a third grade or higher level of English comprehension
  • Reside in the United States
  • Have access to a smart phone

….you may be eligible to participate.

Participation Includes:

  • Parents will complete an online survey (about 20 minutes). and receive $10 compensation
  • Adolescents will complete an online survey (about 40 minutes). Complete short surveys about
    mood and cognition on a smartphone app 3-4 times a day (out of school hours) for two
    weeks. Wear a Fitbit activity tracker (provided by the researchers) for two weeks. Receive up to $210
    compensation.

Recent Posts

  • Barriers to Healthcare Access and Psychosocial Experiences in Adults with Neurofibromatosis Type 1

    Offered by: University of Colorado AnschutzConducted by: Katelyn Glowinski, genetic counseling student, master’s program This research study is designed to gain a better understanding of healthcare barriers faced by adults with Neurofibromatosis Type 1 (NF1), as well as evaluate any associations between these barriers and your self-reported neuropsychiatric or mental health status. If you join... Read More
  • Where Belonging Can Lead: Rachel’s Journey with NF Midwest 

    Rachel was 13 when she first attended Camp NF.  At an age when so much was changing, camp gave her something she deeply needed: the chance to meet other young people who understood life with NF.  “NF camp gave me the opportunity to connect with others who had a shared experience and come to understand... Read More

Responses

Respond

Your email address will not be published. Required fields are marked *