Noah - A Face of NF - Neurofibromatosis Midwest

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Neurofibromatosis Midwest

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-Sue
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neurofibromatosis, nf, nf1, faces of nf, neurofibroma

Noah – A Face of NF

Posted By NF Midwest | On April 24th, 2019

Noah was 7 months old when he was diagnosed with NF1. He is almost 3 years old now. Noah has cafe au lait spots, Lisch nodules, pectus excavatum, delayed speech, and low muscle tone. Noah’s diagnosis of NF was the result of a spontaneous mutation; no one else in our family has Neurofibromatosis.

Noah loves the outdoors and playing at the park, especially with his big sister. He is a huge animal lover too.

Noah’s diagnosis doesn’t slow him down; he is a very playful and loving little boy, who never meets a stranger! He loves to be silly and make people laugh. Noah might be small for his age, but his personality is larger than life.

Thanks for learning about Noah!

– Tami (Mom)