Active Studies

My NF Guide Study

You can make a difference in improving care for people with NF1. If you or your child has NF1 and haven’t visited an NF Clinic Network Clinic (NFCN) in the last twelve months, you may be eligible to participate in this important research study. The goal is to enhance the care that people with NF1 receive from their primary and other doctors.

This study needs approximately 360 people who do not currently have an NF doctor!

RESEARCH FLYER
PRE-SCREENING REGISTRATION

Help Improve NF1 Care

Your participation can lead to better healthcare experiences for the entire NF1 community. Find out more about this and other research opportunities.

Participate in Research

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