Madison Area Teen Gets Great Press for Neurofibromatosis

Marissa and her mom from Madison’s Great Steps team, Marissa’s Mighty Mob, did a fantastic interview on “Talk of the Town,” a segment on 57 News in Madison, Wisconsin.

The two woman, along with their extended friends and family, are dedicated to raising funds and awareness for neurofibromatosis and NF Midwest. Last year their team raised over $5,000. They are just amazing and full of spirit. You should see their crazy team at the walk!

Watch their interview here:

Recent Posts

  • Barriers to Healthcare Access and Psychosocial Experiences in Adults with Neurofibromatosis Type 1

    Offered by: University of Colorado AnschutzConducted by: Katelyn Glowinski, genetic counseling student, master’s program This research study is designed to gain a better understanding of healthcare barriers faced by adults with Neurofibromatosis Type 1 (NF1), as well as evaluate any associations between these barriers and your self-reported neuropsychiatric or mental health status. If you join... Read More
  • Where Belonging Can Lead: Rachel’s Journey with NF Midwest 

    Rachel was 13 when she first attended Camp NF.  At an age when so much was changing, camp gave her something she deeply needed: the chance to meet other young people who understood life with NF.  “NF camp gave me the opportunity to connect with others who had a shared experience and come to understand... Read More

Responses

Respond

Your email address will not be published. Required fields are marked *