iNFo Fair Recordings Posted

Recent Posts

• Barriers to Healthcare Access and Psychosocial Experiences in Adults with Neurofibromatosis Type 1

  Offered by: University of Colorado AnschutzConducted by: Katelyn Glowinski, genetic counseling student, master’s program This research study is designed to gain a better understanding of healthcare barriers faced by adults with Neurofibromatosis Type 1 (NF1), as well as evaluate any associations between these barriers and your self-reported neuropsychiatric or mental health status. If you join... Read More
  October 16, 2026October 20, 2026 Karissa Haberkamp Active Studies
• Where Belonging Can Lead: Rachel’s Journey with NF Midwest 

  Rachel was 13 when she first attended Camp NF.  At an age when so much was changing, camp gave her something she deeply needed: the chance to meet other young people who understood life with NF.  “NF camp gave me the opportunity to connect with others who had a shared experience and come to understand... Read More
  September 24, 2026September 23, 2026 Jennifer Bulandr General