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Recent Posts

• What Is an ABLE Account?

  If you or someone you love is living with NF, you know the costs can add up: therapies, assistive devices, specialists, and more. An ABLE account is a savings tool built to help with exactly that. The Basics ABLE stands for Achieving a Better Life Experience. It’s a tax-advantaged savings account for people with disabilities.... Read More
  July 17, 2026July 17, 2026 Karissa Haberkamp General
• Nothing to Fear: A Children’s Book on NF

  For young children with neurofibromatosis, medical appointments can feel big, unfamiliar, and sometimes scary. An eye exam, an MRI, a doctor’s visit, or even the mention of a needle can bring up questions that are hard for a small child to understand — especially between the ages of 3 and 7, when imagination is strong... Read More
  July 10, 2026July 8, 2026 NF Midwest General