Marissa- A Face of NF

Hi! I was diagnosed with neurofibromatosis type 1 when I was 3 years old.  I am the only one in my family that has it. I’ve had two major surgeries, countless appointments, MRIs, horrible headaches, and struggles with schoolwork and friendships…all from having NF. It sucks, but it will not define me and it will not prevent me from living my life!

-Marissa

See More Faces of NF/Read Their Stories

Recent Posts

  • Where Belonging Can Lead: Rachel’s Journey with NF Midwest 

    Rachel was 13 when she first attended Camp NF.  At an age when so much was changing, camp gave her something she deeply needed: the chance to meet other young people who understood life with NF.  “NF camp gave me the opportunity to connect with others who had a shared experience and come to understand... Read More
  • McKenna Had an Idea. A Few Weeks Later, More Than 100 People Showed Up! 

    McKenna Smith had been thinking about doing something for the NF community. She wanted more people to understand NF, and she wanted to raise funds to help individuals and families find care, resources, support, and connection.  Then she saw NF Midwest’s Walk Your Way campaign and sent us a message.  From there, McKenna got to... Read More

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