Celebrating 35 Years
neurofibromatosis, nf, nf1, faces of nf, neurofibroma

Marissa- A Face of NF

Hi! I was diagnosed with neurofibromatosis type 1 when I was 3 years old.  I am the only one in my family that has it. I’ve had two major surgeries, countless appointments, MRIs, horrible headaches, and struggles with schoolwork and friendships…all from having NF. It sucks, but it will not define me and it will not prevent me from living my life!



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Comments (1)

  • Awe! Totally get it very heartbreaking as a parent . This sounds just like my daughter who is 11 those are all her struggles and none of us have it. Might eventually need brain surgery for tumors but for now just watching them.

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