Ana - A Face of NF - Neurofibromatosis Midwest

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Neurofibromatosis Midwest

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-Myshell
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-Sue
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neurofibromatosis, nf, nf1, faces of nf, neurofibroma

Ana – A Face of NF

Posted By Diana Haberkamp | On May 13th, 2019

Ana is 10 years old. She was diagnosed with neurofibromatosis type 2 when she was seven. Her genetic disorder was a result of a spontaneous mutation. It has been a long road for Ana, as she has had 34 tumors between her brain and spine and multiple surgeries. She has learning disabilities, right foot drop, right sided deafness, and right sided facial paralysis. Ana has tried a clinical trial, but it didn’t have the results we hoped for. She loves to swim, ride horses, and play with her siblings.

– Alesia (mom)