Celebrating 35 Years

We Need Your Personal Letters for Congress

In February, NF Midwest staff and volunteers will descend on Washington DC along with other NF organizations to ask our Senators and Representatives to fund NF research through the Congressionally Directed Medical Research Program (CDMRP) and to continue encouraging research through the National Institutes of Health.

If we want our members of Congress to take notice, they need to receive letters and stories from their constituents.  This can be anyone…friends, family, neighbors, co-workers, etc. If you write them, we will deliver them!

Please take a moment TODAY to write a letter about how NF affects you or someone you love, and share this with others asking them to write also.

Create a copy of the letter for EACH of your TWO senators and one for your representative (a total of three letters).  If you don’t know who your Senators and Representatives are you may look them up at whoismyrepresentative.com. You must also include your address and name in the letter. If you can, include a photo that adds impact. Also, a signature is nice, but not necessary. Here is a sample of a letter.

Please, get them to us as soon as possible via one of the options below.



Comments (1)

  • My daughter has Neurofibromitosis and it is really starting to show all over her face. She is 37 years old and still living at home with all kinds of health issues. Something she said to me and just stays with me all the time. She said to me Dad why me? This purity much sums it up why it would be nice for the government to help find a cure for this horrible disease.

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