A Letter From Amy

When my son, Benjamin, came home from Camp NF this summer, he couldn’t stop talking about everything he had learned and everyone he had met.

Mom Amy

Benjamin has neurofibromatosis, and it meant the world to him to be around other kids who truly understand what living with NF feels like. At camp, he swam, played games, and discovered that many other kids have ADHD too, and that his flexible joints are part of NF.

What touched me most was hearing how proud he felt traveling to and from camp with two older campers. That independence was huge for him, and for me. It was priceless!

Benjamin wouldn’t have the opportunity to attend Camp NF without the support of NF Midwest and people like you.

You gave him more than a week of fun. You gave him belonging.
You gave him confidence and hope!

Your gift today allows more kids like Benjamin to find friendship, understanding, and the reminder that no one fights NF alone.

With gratitude,

Amy

P.S. Camp NF welcomes children with NF—including NF2-Related Schwannomatosis and other schwannomatosis types—ages 7 to 17 on the beautiful campgrounds in Virginia.

Recent Posts

  • Nothing to Fear: A Children’s Book on NF

    For young children with neurofibromatosis, medical appointments can feel big, unfamiliar, and sometimes scary. An eye exam, an MRI, a doctor’s visit, or even the mention of a needle can bring up questions that are hard for a small child to understand — especially between the ages of 3 and 7, when imagination is strong... Read More
  • NF Awareness Month Reached Across Our Six-State Region 

    Thank you to everyone who helped raise awareness for neurofibromatosis (NF) during May!  This year, NF Midwest families and advocates helped bring NF Awareness Month into communities across our six-state region. Through state and local proclamations, more people had the opportunity to learn about neurofibromatosis and recognize the families who live with NF every day. ... Read More

Responses

Respond

Your email address will not be published. Required fields are marked *